Well, for the most part my CT scan showed fairly positive results. My lungs remain clear, with no additional disease and no fluid, no new areas of problems....... My head (which the last doc threw in either for good measure or to freak me out, which worked like a charm) is clear, as are all my other organs, liver etc.... no new areas of cancer. All very good.
I do, however, have one area that is a problem, and that is the mediastinel lymph nodes (they are easist thought of as sort of surrounding the lower part of the esophagus). They have shown slight growth. Hard to say if it counts "officially as progression" but it doesnt really matter as it is causing me trouble with symptoms, and therefore unacceptable.
These nodes seem to be pushing on something important, creating an urge to cough and also a real problem with shortness of breath, and shortness of breath with even minimal exertion. This has been getting worse for me especially over the last month, and both have become somewhat unbearable. Episodes of either (terrible cough, and/or shortness of breath) are scary and exhausting.
SO........ I move on to try another chemo, this time it is Navelbine. And we all hope for the best. If the Navelbine shrinks these nodes, then all will be well, at least for awhile. My oncologist is also looking into the possibility of radiation to those nodes. It would be a large area to radiate and so may not be possible, especially given the radiation I have already had, but I guess we will see what the raditaion oncologist thinks.
This particular news has hit me hard, harder than previous CTs, for some reason. My biggest sadness is that I am now SO limited in what I can do and I must try to use my wheelchair for everything, to avoid getting short of breath. It is managable, but it feels horrible to me. I'm trying to stay calm because crying just makes breathing harder, and therefore I'm limiting my conversations until I get more adjusted to this new reality.
I will most certainly read the blog, but for those who do not post answers (or who are sick of posting, Lord knows that is a legitimate option) I've also put my email address in the margin. I will get myself over to the computer (or use a laptop) every few days.
So.... I start the new drug on Monday.... and I really need it to work!!!!! It seems odd that lymph nodes could be causing all this trouble even when my lungs are fine, but there it is, this can be a cruel and unusual disease!
Love to all, Joanne