Joanne's Blog

Joanne’s Final Letter

2008-03-27T09:04:00.000-07:00

This will be the last posting to Joanne’s Blog. What follows is a letter that Joanne wrote to be shared with all of us at this time. I read this letter out, following the eulogy, at the prayer service on March 25th. The previous posting contains the eulogy, which includes a letter written by Gord. Also, you will find a final posting on Joanne’s book of the week blog as well. Furthermore, I have added links to Gord’s email address and Joanne’s mom’s email address to the bar on the right hand side.

We will be compiling a summary of remembrances from the blog, and other sources. We encourage you post or forward your thoughts. For those of you on Facebook, we have set up a group call "Fare Thee Well Love". We would love to have you join.

Again, on behalf of all of Joanne’s family, thank you for sharing this journey with all of us and providing your support over the past few years.

Darryl

27 March 2008

What kind of person wants to talk at their own funeral? Well for those of you who knew me at all, it won’t surprise you that I have a few things to say, and cannot miss this chance to do so. While it grieves me to leave this world “early”, I also want to express my gratitude for the wonderful life I have lived.

I have lived a life filled with love.

I grew up in a loving family, where I was supported to grow into a strong and confident person. The whole time I grew up I truly believed that my extended family all loved spending a lot of time together, and I think they did. My grandparents, aunts and uncles have been role models and loving supporters and taught me how a family should work, how to love each of us among us -- with whatever gifts or challenges each person has; and how to persevere, how to make the best of any situation. To endure whatever cannot be cured – and still feel grateful.

My parents have been generous, wise and selfless in their love and support. My sister Kelly and my brother Darryl (and their families) are all truly wonderful people who offer their companionship, friendship and support freely – without a second thought to what they receive back. I have been blessed with friends with whom I have shared great fun, a few tears, only a tiny bit of trouble, and … I’ve had an enriching career and had colleagues who extended much support and kindness.

I have had a happy marriage to a wonderful life partner, and I have experienced love expand exponentially as we were blessed with our wonderful children, Michelle, Craig and Brian.

Many of my friends and family have become fellow travelers with me on my journey with breast cancer. Over and over I have been overcome with the kindness that people show….It has been humbling to receive so much love, and this is what every bit of kindness has been.

So, although I have had a most ORDINARY life, it has been extraordinary in that I consider it so filled with love. Apart from this present problem of not living as long as I wanted and not sharing more time with all of you, I could not ask for any more of life.

I’ve seen many other ladies tell their friends or families that they would see them in butterflys or ladybugs or dragonflys, etc…. well, I’m not much for bugs, so this doesn’t appeal. I do love the sunshine, but it seems a bit of a burden to suggest you think of me every time you see that…. So, I would be content if you would simply think of me when you raise your glass to enjoy that love and time with your own friends and families….If I were around, you know I would join you with a cup of coffee or a glass of red wine.

With love and gratitude,

Joanne

Joanne's Eulogy

2008-03-27T08:56:00.000-07:00

I am extremely honoured to have the privilege to stand before you tonight and talk about my wonderful sister, Joanne.

She has been, and will continue to be, an inspiration to me and to many others as well.

As I thought about what to say tonight, it became clear to me that I had an impossible task. How can I possibly do justice to Joanne’s life in a few short words?

But I will try…

Joanne’s Journey, as we call the time she lived with breast cancer, has defined much of the last seven years of her life, as well as those of her family’s lives. During this time, she has demonstrated incredible wisdom, grace and dignity.

Quite recently, she said to me that “there is not one part of this that I accept”. And while she would never accept breast cancer, she would not let this affect her outlook and she faced its challenges with incredible resolve.

Through this, she has shown us how to approach the type of challenging issues that all of us will face at some point in our lives. This is a lesson that we should all be thankful for.
Joanne helped us along the way by being honest and by being willing to express her challenges, her feelings and by savouring the joy in every day.

Joanne was very articulate and wise. Throughout her life, she had a voracious interest in reading. She used this love of reading as a way of better understanding her world as well as the world around her. It is very fitting that she choose the quote on the back of the memorial card. It is referenced in one of her favourite books, If Today be Sweet, and it is fitting because it sums up her outlook on life and became, to the end, a rallying point for her family.

Along her journey, she inspired many people, including many of those that were providing her with care. She formed strong bonds with the Palliative Care team and these relationships provided her, and the entire family, with incredible support and insight along the way. We are very grateful for this.

She had the ability to connect with people; quickly and sincerely. One story that comes to mind happened only a few weeks ago and is that of a hospital porter who was responsible for moving Joanne, by stretcher, from her room in the Oncology ward to the radiation treatment room where she was receiving her final palliative radiation treatments. She would chat with Joanne for only two or three minutes at a time as they moved the short distance within the hospital. After only a couple of these short interactions with Joanne, this porter approached our mom to tell her how much Joanne had affected and inspired her. In only a few minutes, Joanne had been able to demonstrate such courage, honesty and dignity and had made this person feel that her small contribution to her care was meaningful.

Through her blog and her online breast cancer support groups, she touched countless people. The sense of community that emerged from these efforts was significant. So significant in fact, that several of her breast cancer or “bc sisters”, as they refer to themselves, travelled great distances to be her while she was alive and now again to be with all of us tonight.

One such “bc sister” NYCarol said to Joanne,

…you have made such a difference in the lives of so many people. Yes, your family, your close friends, but beyond that, hundreds, perhaps thousands of people who visit this site and have been reassured or given information by you. Your sharing has been simply amazing....A legacy few ever achieve in their lifetimes....and you did it with intelligence, caring and humor.

Throughout this journey, her actions and words were compassionate, intelligent and brought comfort to those around her. In those that have supported Joanne (and this is many), a common thread emerged. It seemed that no matter how hard you tried to help and comfort Joanne, she would end up helping you.

Another of her "bc sisters”, who goes by the name “Tender”, described it best when she said to Joanne in a very recent post.

Incredulous! Instead of me helping to carry your load, you offer in your words, over and over again, your determination to teach us how to carry ours personally. What a remarkable woman you are Joanne. I thank you for your perseverance in keeping uplifting thoughts present, all the way, and in every way. You are teaching your children and us, true greatness in life.

However,
as incredible as Joanne’s Journey was, it does not define her life.

Her Journey with breast cancer was simply another, and more recent, example of the type of person she was throughout all aspects of her life.

Joanne was many things, to many people.

For me, and my sister Kelly, Joanne was a wonderful sister.

For those that knew Joanne, it will not surprise you to hear that most of my early and most savoured memories of Joanne involve food.

I don’t really have a favourite of these memories, but if I did, it could be one which is also one of my fondest childhood memories; which involved playing Galloping Gourmet (a tv program from the late sixties) with Joanne, (being the oldest), as the illustrious chef and Kelly and I the eager audience ready to taken by the hand and run up to the table to taste the latest concoctions that she would produce (usually chocolate ice cream).

Or perhaps it is one of the many birthday cakes she baked for me, including the one that slid off the counter and onto the floor.

Or better yet, perhaps it was the time when my new found appreciation for cheesecake coincided with her interest in experimenting which resulted in a seemingly never-ending daily dose of new and delicious cheesecakes.

Later, while I was living in Montreal for university, I remember being surprised when a package of hand written recipe cards appeared in my mail box. She was so encouraging and gave me the confidence to try new things. I would not have been nearly as well fed those years and those recipes still form the basis for many of the things that I cook.

Several years later, I remember visiting Joanne and Gord and being in awe while witnessing the creation of the most delicious homemade soup I had ever tasted. It appeared seemingly out of nowhere; after only a short walk through her garden and a brief visit to the fridge, all the while being flavoured by a wonderful conversation. During which I was unable to get a word in edgewise.

These are small things, but as I have since learned from Joanne, there is great pleasure and significance in these everyday things.

When I asked Kelly about her impressions of Joanne from our childhood she recalled how generous she was of her time and her energy. Joanne always took such good care of us. When on long car trips, she kept us amused with the most amazing collection of activities that she would pull out at intervals from a box that she had created. Kelly remembers how meaningful it was for her, as the younger sister, to be included with Joanne and her friends. I recall the daily ritual of coming home from school to find Joanne, Kelly, Anne and several other her friends watching “Another World” on television.
I always felt welcome as well.

Joanne always made us feel special. This is something that we have both enjoyed witnessing in Joanne’s relationships with our children. She formed connections easily and sincerely.

For our parents, Joanne was a wonderful daughter.

Joanne placed great value in family and was instrumental in so many of our families’ traditions, rituals and gatherings. I cannot begin to try to speak on behalf of our parents, but I am certain that she brought great pride to our parents throughout all stages of her life.

Joanne was a wonderful wife for Gord and a wonderful mother to Michelle, Craig and Brian.

Joanne always spoke so highly of Gord and of her children and it is clear to me that this is the part of her life that she took the most pride in, and gained the most satisfaction from.

At this point, I will read a letter that Gord has asked me to read. He wrote it to Joanne in the past few days.

My dear, dear, love Joanne:

Words cannot adequately express the thoughts and feelings we are all experiencing but words are all we really have to express ourselves at times like this.

You have touched the lives of many people around the world but none so much as mine. You have shared my joy and sorrow (and there has been much more joy than sorrow). You have been a source of reason and conscience in my times of anger, my source of hope and comfort in times of fear and stress. You have given me the strength, courage and confidence to make tough decisions in my life and consoled me if they didn’t turn out as I expected.

You were a loving, devoted, encouraging mother who always put our children’s wants and needs ahead of your own and always had their best interests at heart.
Your courage, strength, generosity, wisdom and love extend beyond family and borders. As a mother, wife, sister, daughter, friend, colleague, employer and employee you always acted with respect, integrity, wisdom, and compassion.

I will always remember you as my girl who saw the glass as half full rather than half empty. (Except in the case of red wine in which case it was half full but needed filling) Everything was a challenge or an opportunity -- not an obstacle or a road block. Even in the toughest times you maintained hope, integrity, respect, dignity, and clarity of purpose. You loved life and lived it to its fullest. I know if you could say something to all of us right now you would say this: “even though the glass may seem empty right now, you know it is really still half full.”
I could go on and on but I know everyone would rather be celebrating your life than listening to me so I will end with this:

You were my navigator through life, my soul mate, my partner in all things and my very best friend.

You will be forever loved and missed.
Gord

Joanne was a successful Dietitian.

She excelled at her chosen profession and she made a real difference in the lives of those she worked with. She took great pride in her profession and worked to expand the role and respect for Dietitians across Canada. Recently, she became involved on the executive of the Canadian Society for Clinical Nutrition which advocates for a multi-disciplinary approach involving Dietitians, Doctors and Nurses. The respect for the science of Nutrition combined with the multi-disciplinary approach is very similar to the manner in which she embraced the medical team that cared for her while living with breast cancer. Once recognizing this, it is easier to understand her point of view that her approach to living with cancer was ordinary, however modest she may have been.

Joanne was intelligent, articulate and thoughtful.

I have always had an intense respect for her intellect. She excelled academically at all levels of her education. She possessed the gift of the perfect balance between pure academics, common sense and creative thinking. I enjoyed our many discussions on a wide range of subjects, most of which were fuelled by a good pot of coffee. Joanne always seemed to have either a strong interest in, or a working knowledge of just about any issue. She was much like our late Auntie Annie in that regard.

Joanne was a pillar in our extended family.

She occupied a unique position in my mom’s extended family. Being the oldest of a large group of cousins, she was a bridge between the adults and the kids. She could occupy both worlds at the same time and was accepted equally in each. She has had a significant impact on the lives of many of the members of our extended family. She nurtured special relationships with many of our Aunts and cousins that go far beyond the norm.

For all those that knew her, Joanne was a great friend.

Joanne was blessed with many, many incredible friendships. Her generous spirit and deep loyalty led to bonds that cannot be broken. Wherever their professional lives took them, Joanne and Gord struck deep and meaningful friendships. She was always extremely welcoming and gave freely of her time and energy. These friendships often extended beyond Joanne and several of her friends have become an important part of our family.

We are all better off for having shared her friendship.

Joanne’s life was far too short and this is a tragedy that cannot be adequately described.
However, her life was well lived. She made a difference and leaves a tremendous legacy.

She has helped us to move forward without her physically in our lives and we must honour this.

Of course, it is absurd to think that she will not be in our lives. She will never be far from our thoughts. We will savour our wonderful memories and share the lessons and legacies that she left us.

I will be reminded of Joanne while enjoying a very fine meal or when savouring a good cup of coffee. I will think of her when I read a particularly good book, especially one of her favourites. I will wish that she could enjoy a really special piece of dark chocolate. I will recognize her in her children. And I will smile as the wonderful memories flood back to be savoured and shared.

To Gord, who is such an important part of our family, to Michelle, Craig and Brian who we love so dearly, to my Parents and to the rest of my family, all I can say is this;

There will undoubtedly be difficult days ahead, but we will get through them and we will do it together. We will take comfort from her lessons and we will be thankful for all that she has given us. We will fulfill the promises we made to Joanne and we will do this by following her example.

Darryl

In Memoriam

2008-03-20T16:41:00.001-07:00

At the age of 46, Joanne Patricia Schweitzer, of Regina, died peacefully on Wednesday, March 19th, 2008, of breast cancer.

Joanne was predeceased by grandparents James Condon Sr., Germaine (Carrière) Condon and Clara (Salamon) Maloney, and several aunts and uncles. She is survived by Gord, her husband of twenty-three years, daughter Michelle and son Craig of Winnipeg, and son Brian of Regina; parents Jim and Eileen Condon of Regina, sister Kelly (Gary) Sherlock of North Vancouver, brother Darryl (Karen) Condon of North Vancouver; grandfather William Maloney of Regina; parents-in-law Arnold and Jennie Schweitzer of Prairie River SK, sister-in-law Laurelle (Kevin) Borstmayer of Prairie River, brother-in-law Bret Schweitzer of Calgary, nieces Holly, Heather and Laurel Sherlock, Kate Condon, Lacey Borstmayer, nephews Niall Condon, Jared and Jayden Borstmayer; as well as numerous aunts, uncles and cousins.

Joanne was born in Regina on October 19, 1961 and received her education at St. Matthew’s Elementary School and Marian High School before graduating from the University of Saskatchewan in 1983. She also received an MBA from Athabasca University in 2000. Joanne was a devoted wife, mother, daughter, sister, and friend. She had a successful career as a Registered Dietitian in various locations across the prairies including Kindersley and Tisdale in Saskatchewan, Edmonton and Grande Prairie in Alberta and most recently in Winnipeg, Manitoba. Gord and Joanne’s careers involved residence in several communities, and they both maintained lasting friendships with people from many areas of Canada. Joanne was an excellent cook and welcoming hostess to all visitors. She was an avid reader; and loved to travel (especially if shopping was involved). Her many needlework projects are treasured by their recipients. Her love of chocolate (and an occasional glass of red wine) is well known!

From the first diagnosis of breast cancer in June 2001, Joanne has bravely, honestly and courageously faced every challenge presented to her on this journey with cancer. In the last few years, these were especially frequent and difficult, but she managed to keep smiling and maintain a positive attitude. She endured the many painful surgeries and treatments with grace. Her amazing strength was an inspiration to everyone around her, and to those who maintained contact from a distance through her blog or e-mail. Through online groups or by personal contact, she was a tireless supporter to others facing similar challenges, and provided encouragement to individuals throughout the world.

Joanne’s family is forever indebted to the many caring and compassionate individuals at the Allan Blair Cancer Centre, especially Dr. Chalchal, John and the other nurses, as well as the volunteers and other staff. And to the personnel of the Regina Palliative Home Care program, we are forever grateful. Without exception, these dedicated caregivers provided continuous support in an efficient and dignified manner, always considerate of Joanne’s welfare and needs. Special thanks to Lorraine and the other home care nurses, and to Louise, Cliff, Barb, Danae, Joan, and all the other caring people who constantly helped us at home and in hospital. Thanks also to the compassionate and caring staff at Pasqua Hospital in 3B and 3A. Joanne also received excellent care and treatment under cancer programs in Alberta and Manitoba. Thank you to Janice Siemens and her family in Winnipeg for their never-failing support to the entire family. Special thanks also to Anne Bosgoed, and all the “Book Club” members for their constant support. To that special group of Joanne’s “sisters” at breastcancer.org: thanks for your never-failing love and support. Joanne was grateful for all the good wishes, prayers and support received from family and friends everywhere. There are hardly words to convey the depth of our gratitude to everyone.

A prayer service will be held on Tuesday March 25th, 2008 at 7:30 p.m. in the chapel of the Victoria Avenue Funeral Home, 2080 East Victoria Avenue, Regina, led by Palliative Services Chaplain Cliff Geiger. The Funeral Mass will be held on Wednesday March 26th, 2008 at 11:00 a.m. at Resurrection Roman Catholic Church, 3155 Windsor Park Road, Regina, Father Ken Koep officiating. Joanne will be buried in Lebret, where a private service for family members will be held.

In lieu of flowers, it was Joanne’s wish that donations be made either to Regina Palliative Care Inc. 4101 Dewdney Avenue, Regina S4T 1A5 or to the Joanne Condon Schweitzer Scholarship in Nutrition c/o Lisa Green, Development Officer, College of Pharmacy and Nutrition, 110 Science Place, University of Saskatchewan, Saskatoon SK S7N 5C9

May she rest in peace

2008-03-20T09:34:00.000-07:00

A prayer service will be held on Tuesday March 25th, 2008 at 7:30 p.m. in the chapel of the Victoria Avenue Funeral Home, 2080 East Victoria Avenue, Regina. The Funeral Mass will be held on Wednesday March 26th, 2008 at 11:00 a.m. at Resurrection Roman Catholic Church, 3155 Windsor Park Road, Regina.

Fare Thee Well Love

2008-03-19T20:17:00.000-07:00

At 7:09 pm, Joanne died peacefully surrounded by loved ones. Her journey has been long and difficult and at last she can rest.

I will post again with more details once they are finalized. On behalf of the family, thank you for all of the support that you have given Joanne over the past few years.

Darryl

19 March 2008

16 March 2008

2008-03-16T21:42:00.000-07:00

Joanne returned to Pasqua Hospital today and is comfortable now in the Palliative ward. Her room is peaceful and the ward is well equipped to make it easier on everyone. Her symptoms are being well managed and she is now better able to focus her energy.

In the midst of yet another difficult day, Joanne was able to find some peace and even told Mom that “today was sweet” (a reference to one of Joanne’s favourite books, “If Today Be Sweet” by Thrity Umrigar – see blog posting dated Sunday, August 11, 2007 in Joanne’s book of the week blog). We agreed with Joanne that tomorrow would be sweet as well. All continue to do what is possible to make that be.

Darryl

15 March 2008

2008-03-15T15:54:00.000-07:00

Hello again,

The Ides of March…

For the time being, Joanne remains at home. Michelle and Craig have returned from Winnipeg so the family is all together. Joanne’s aunt, Lorna Mae is here helping with her care and she is providing incredible support to all, but especially to Gord and Mom. Joanne remains comfortable and her symptoms are being well managed. At this point, it is likely that Joanne will return to the hospital in the next couple of days. I will continue to post with updates as things change.

Thanks again for your continued support.

Darryl
15 March 2008

Update - 9 March 2008

2008-03-09T13:25:00.000-07:00

Hello,

Darryl here, with a brief update on behalf of Joanne.

Joanne remains at home with the continued support of her family and wonderful care from the Palliative Care Services. Email greetings and cards are appreciated very much at this time. She fatigues easily so is focusing her energy on her family. Therefore, phone calls and visits are being limited to immediate family only.

We are all very grateful for the continued support that Joanne and the rest of the family are receiving.

Darryl
9 March 2008

Bald is beautiful, again...........plus a diffiuclt update

2008-02-28T04:28:00.000-08:00

Well, some of you might be wondering what I am looking like these days and so here I am, this is a very recent photo. As promised, the radiation has caused 100 percent hair loss........ so it's completely bald again for me. To be honest, I didn't expect to leave the whole breast cancer treatment scene with hair, so it isn't really a big deal. Plus, a little comfort that the radiation is doing what it is supposed to be doing!

I am feeling quite fine these days, and thanks to my web of support, I am able to enjoy every minute of every day quite well. I am not exaggerating when I say that I can't wait for each new day to begin.

I had an oncologist appointment this week at which we were to discuss chemo, and whether or not it could bring me any benefit. Well, the time has come, and my oncologist does NOT feel like he can offier me very much via chemo, either through time, and definitely NOT through quality of life. It wasn't exactly new news, but still hit kind of hard, as this was kind of the final bridge to be crossed in decision making related to my active cancer treatment.

SO.... what this means is that I have decided that it is time to stop active treatment. I do have a very high level of trust in my oncologist, and I would want all my family and friends know that he has known my goals (more time even if it is chemo time) right from the start and has been both respectful and cooperative towards that end.

The focus of my care now becomes comfort. I will have any treatment that would improve my care and treatment, but nothing aimed primariy for stopping the cancer. And so, the time I have been given by the palliative radiation is the time I have. And that, as we all know is a mystery that none of us can begin to guess at, but of course, I can't help hoping for the most there can be, life is just too darn good to leave.

It's yet more emotional adjustment for the family, but I would say that everyone, kids, my parents, siblings etc... are all graceful and very focused on helping me. It is humbling, but also it is so nice that I cannot utter one thing except my love and gratitude.

I'm getting questions about visits again. This is a very tough call, because I must budget my energy with care and I would please ask you to check with my mom or Gord or myself. My energy is very limited, and especially when the kids are all home, Ifeel that my time must be their's.

I usually am very good with short phone calls now, I seem to have regained my strength for that, although and email or snail mail is ALWAYS managable. Email is the very easiast and so far, I get from my bed to desk pretty easily.

I send lots of love to all you, my wonderful friends and family, without you over these several years, I simply don't know what I would have done. Joanne

Stable

2008-02-22T19:44:00.000-08:00

Hmmmmmm..........in a food mood............ that is a constant state lately, for which I point to the steroids I take to help stop any swelling in my brain. I think I've even gained weight, which is really not a bad thing for a person in my situation. Even before the steroids, my appetite was pretty good, so I can't complain...... it is a relief, not being able to eat is a really terrible thing.

Things are mostly stable, and I am about the same. I am fatigued from the radiation, and I also have times when the energy is better, so I am most certainly able to enjoy my days, although my range of activities is definitely very narrow.

There is really not much to report, so I'll keep it short..... Brian is on his school band trip to Calgary. Michelle and Craig return to Winnipeg this week for the week. Gord has been mostly off work, or at least on a very reduced schedule. Mom continues to be here daily and keeps our lives possible. Dad is around too and so we have much help right here and right now.

I continue to rejoice in you, my most precious family and friends. Joanne

Joanne again with my latest update!

2008-02-16T17:57:00.000-08:00

Hello from Joanne, and happy belated "Valentines' Day ! Although, frankly, this day has never held a huge place in my life, I will admit that it was "sweet" this year to soak up all the love and good wishes that are permanently floating around my house.

I am doing better than I think anyone could have expected. The pnuemonia seems to be cleared up, I seem to have made it through the radiation without terrible ill effects, and in many ways my hospital stay was a good "tune-up" and it helped me in more ways than one.

I have a new schedule AND new additional meds for pain, and it has worked very effectively - I am in better shape pain wise than before the hospital, I think I just hadn't really noticed. Also, some of the unpleasant symptoms I had been having - such as those brutal coughing spasms, have really been under better control, again, with another new medication not previously tried.

While things were indeed quite dire and serious for awhile there, the emergency seems to have abated and I feel like I've managed to dodge the bullet, at least for now. It's hard to quantify, because things change slowly, but I do think that I am regaining strength. My oncologists are optimistic once again about my physical state, and are again talking about adding chemo (palliative dosages from now on) to see if they can improve my breathing.

One thing I CAN truthfully say, is that even with all my limits, I am truly able to enjoy my life, such as it is. I'm delighted to wake up to each new day and actually get excited about it, I'm all ready to roll when mom arrives at 8 am, and that is quite a new experience for a sleepyhead like me.

I do have incredible fatigue (expected from radiation and whole brain radiation) so I rest alot. However, that's my only "job" right now, so it is very doable, I have a huge network of support - especially from my mom and from Gord who make my life completely managable. Given that my energy is still so limited, I must of course "budget" it, and for me this means I continue to visit with family only at the moment. And I appreciate all of your understanding.

There really are no words for me to find, to express my gratitude and devotion, to all of you, my family and friends. Your support of me, and my family, each in your own unique way, really does make a difference. For me, it is tangible. Every kind thought, prayer, every item of food, every gift of cheer, of flowers and cards, even every bit of correspondance (email and snail mail still are best for me) lifts me up and helps me to face the journey. I think it helps my family in similar ways.

So, thanks so much to all of you, whether you know it or not, you make a difference.

Sending love to all - Joanne

Home!

2008-02-08T22:34:00.000-08:00

Hello,

Darryl here again, on behalf of Joanne.

I wish that I had taken this picture as today was a spectacular prairie winter day in Regina; warm, sunny and frost covered trees much like this image. This was the setting when Joanne returned home from the hospital earlier today and set up in her comfortable sun room.

Her five palliative radiation treatments are now complete and although she is extremely fatigued, she is otherwise generally OK. The plan at the moment is for Joanne to spend the next two weeks at home recovering from the radiation prior to any further intervention.

Joanne continues to be very grateful for all of the emails, cards and written greetings she is receiving as they are always welcome and easy for Joanne to receive. Depending on the situation at the time, she may be able to take brief phone calls. At this time, please understand that visits are being limited to immediate family only.

On behalf of her family thanks again for all of your support.

Darryl

8 February 2008

2008-02-04T21:38:00.001-08:00

Hello,

Darryl here again, on behalf of Joanne.

Things are relatively stable at the moment. Joanne has now had two of the planned five palliative radiation treatments. The first was on Friday afternoon. She took advantage of her “weekend pass” and spent Saturday and Sunday at home with her family. Michelle and Craig are back from Winnipeg for a few days so, together with Gord and Brian, they are all able to be together for the time being. Joanne returned to the hospital on Sunday night and had the 2nd radiation treatment on Monday morning. The remainder of the treatments are scheduled for the next few days. So far, the side effects from the radiation have been manageable which is a relief to all of us. We are all taking things day by day and hopefully Joanne’s symptoms will remain stable.

Joanne sends a huge thank you to all of you for all of the support that she and the family are receiving. She is thankful for all of the prayers, best wishes, blog messages, email messages, cards and flowers.

Darryl

4 February 2008

Latest Update

2008-01-31T21:13:00.000-08:00

Hello,

Darryl here, on behalf of Joanne, who asked me to provide an update to all of you.

It has been a most challenging week. Things changed quite dramatically on Sunday night when Joanne ended up in the hospital due to a high fever. She spent a day in Emergency until she was finally able to be admitted into the Oncology ward. In the meantime, on Monday, additional results came back, from her latest CT scan, that indicated further progression, this time to her brain. This news has set the next chapter of this journey into motion. The focus of Joanne’s treatments has shifted from active to palliative. There are no plans for additional chemo at this time. Tomorrow, Joanne is having the first of several palliative radiation treatments focused on the brain and esophagus progression. The intention of this phase of radiation is to ease the onset of symptoms that would otherwise arise from this new progression. Next steps and future treatment options are unclear at this time.

Joanne, Gord, Michelle, Craig and Brian are facing these latest challenges with the same strength and focus that we have all seen and drawn inspiration from in the past months and years. The continued support and prayers from all of you are appreciated very much, especially during this next most challenging phase.

Darryl Condon,
31 January 2008

CT scan shows mixed results

2008-01-25T19:41:00.000-08:00

Well, for the most part my CT scan showed fairly positive results. My lungs remain clear, with no additional disease and no fluid, no new areas of problems....... My head (which the last doc threw in either for good measure or to freak me out, which worked like a charm) is clear, as are all my other organs, liver etc.... no new areas of cancer. All very good.

I do, however, have one area that is a problem, and that is the mediastinel lymph nodes (they are easist thought of as sort of surrounding the lower part of the esophagus). They have shown slight growth. Hard to say if it counts "officially as progression" but it doesnt really matter as it is causing me trouble with symptoms, and therefore unacceptable.

These nodes seem to be pushing on something important, creating an urge to cough and also a real problem with shortness of breath, and shortness of breath with even minimal exertion. This has been getting worse for me especially over the last month, and both have become somewhat unbearable. Episodes of either (terrible cough, and/or shortness of breath) are scary and exhausting.

SO........ I move on to try another chemo, this time it is Navelbine. And we all hope for the best. If the Navelbine shrinks these nodes, then all will be well, at least for awhile. My oncologist is also looking into the possibility of radiation to those nodes. It would be a large area to radiate and so may not be possible, especially given the radiation I have already had, but I guess we will see what the raditaion oncologist thinks.

This particular news has hit me hard, harder than previous CTs, for some reason. My biggest sadness is that I am now SO limited in what I can do and I must try to use my wheelchair for everything, to avoid getting short of breath. It is managable, but it feels horrible to me. I'm trying to stay calm because crying just makes breathing harder, and therefore I'm limiting my conversations until I get more adjusted to this new reality.

I will most certainly read the blog, but for those who do not post answers (or who are sick of posting, Lord knows that is a legitimate option) I've also put my email address in the margin. I will get myself over to the computer (or use a laptop) every few days.

So.... I start the new drug on Monday.... and I really need it to work!!!!! It seems odd that lymph nodes could be causing all this trouble even when my lungs are fine, but there it is, this can be a cruel and unusual disease!

Love to all, Joanne

Taxoterrible

2008-01-19T18:07:00.001-08:00

Well, there's no way to sugar coat it, these two treatments of Taxotere have been very gruelling, and have left me weak and fragile. Even with the 25% dose reduction on treatment #2, it has been very tough, although I will say that I haven't had to make a trip to emergency, so that is certainly a success of sorts.

Interestingly, my lungs apparently sound very clear, apparently excellent in fact.....and so on the one hand it seems that it might be doing its job. I am very relieved that I will have a CT scan this coming Thursday, so that we will have a clear picture of what is going on, and I can make some decisions about what to do next.

So, I am laying very low..... resting quite a bit and unfortunately not really up to much by way of visitors or outings.... Again, I'm really pleased to be getting scanned this week so we can make a little sense out of it all. I have a few other drug options if I don't want to continue with the Taxotere, and frankly, that might be my choice, I'll just wait and see on the whole thing, until I know how well it is working.

One thing I will say is that I am enjoying watching winter from INSIDE my sunroom..... I honestly do not miss being out and about in -30 degree temperatures!

Joanne

View from Here

2008-01-13T20:16:00.000-08:00

Michelle is long gone back to school, but I thought that this photo of the two of us in my bed was a little prettier than just me lying around in bed......... You can see how lucky I am to have a great view of the outdoors.

And, that's what I've been doing...... I'm on Day 7 now of Taxotere #2........ it continues to be a tough go, and even with the dose reduction, I still feel like I'm taking quite a pounding. Anyway, today seemed to be much better and I hope that is a good sign of things to come, although I was still tired and resting most of the day, I started "feeling" more myself, and that is always a welcome feeling.

I continue to be plagued with low grade fevers, weakness and fatigue and just a general malaise. I do take CSGF (Neupogen), which homecare gives me via injection every day. That is supposed to keep my white blood counts from bottoming out. Both Neupogen and the Taxotere cause bone pain though, and for that, I use heat, Morphine and careful use of tylenol (i.e. if I do not have a fever, I can use Tylenol).

Anyway, even having said all of that, I think the corner is turning, and we'll see what this week brings. Wish me luck!!!!!

Holiday Doggie

2008-01-04T12:59:00.001-08:00

I think this might have been the biggest hit of the holidays... Heidi has taken to this new dog bed like a duck to water! We think she enjoys the pillows, it's crazy!

Well, we are winding down now.... Craig returned to Winnipeg (via Indianapolis for a leadership conference through his fraternity, Delta Upsilon). Michelle returns tomorrow. It's been a wonderful and lengthy visit which I have enjoyed very much, but it is time to get back to "real life" now. The kids have work and school, and I have some resting to catch up on!

I saw an oncologist today who was subbing for my regular (who is on vacation). Because I seemed to have such a tough time last cycle, he is giving me a 25% dose reduction, and I am thrilled about this, because I think I really need it, my quality of life was wiped to almost nothing for too long with my last cycle. My lungs sound "very clear" which is a great sign in my books. I do have a little lump on my shoulder - could be a cancerous lymph node, or could be something else..... if cancer, that will likely be the end of this chemo, but time and CT scans will tell that for sure.

After the first 2 1/2 brutal weeks, I am actually feeling MUCH better, MUCH more "myself" and absolutely everything has improved in the last couple of days - my breathing, my stamina, my cough. I've been up and about a bit as well. I even went to a movie with Anne and Michelle (and Brian with Anne's son Chad). (movie: P.S. I love you - huge chick flick warning, not a man in the theatre and I think that was just as well!).

Upcoming events: Chemo (Taxotere at 75% dose): January 7

That's all that is new for now! I hope that 2008 is treating you all well so far. For myself, I'm pretty happy to see each new day of it.

Cheers - Joanne

Merry Christmas

2007-12-27T12:15:00.000-08:00

Mom put up our tree in our sunroom this year, and it is perfect... this is where most of the Schweitzers are hanging out this holiday season! And for me, it is perfect, as I lie in my bed I get to have the tree 24/7, just lovely!

Well, the first round of Taxotere this time was really, really tough, and it really took the wind out of my sails..... I had all manner of nasty side effects and the worst was that it made me exceptionally weak and unable to do much of anything. It was not pleasant, PLUS I ended up with fevers, on antibiotics and with some kind of fungus thing in my mouth, also treated with meds.....

However, good thing our memories fade, as this week has brought gradual improvement..... I was pleased to make it to mom's for the family gathering with Maloneys on the 22, for Christmas eve and Christmas day..... granted, my visits were short due to my fatigue, but still, I was able to enjoy everything very much.

Gord has been working through most of the season, but since the kids are home from Winnipeg, there is plenty of activity in our home. And, thanks to the generosity of many, our fridge is full and we have wonderful selections of baking and treats. My sincere thanks to all of you who helped make our Christmas "normal" it is greatly appreciated.

We'll continue with a low-key version of events - lots of movie watching, game playing and quite stuff - reading, etc.... all things I can participate in from my bed. I'm having a great time with the family here, and am very grateful for the wonderful season.

Cheers to all !! Joanne

Scan Results: Stable - "More or Less"

2007-12-14T12:37:00.000-08:00

"Stable - more or less" - I'm not making that up, that is what my oncologist pronounced! The CT scan showed mostly good news. Compared to October 31, 2007, there are no new areas of cancer, no new fluid, and mostly what is there is stable. However, two of the existing nodules (one in the lower left lung, and one of the mediastinel ones - hilar region) are each a little bit larger.

Bottom line, it would not be officially called "progression" due to the smallness of the increase, HOWEVER, it certainly an indication of which direction things are headed! So, I will be switching to Taxotere, and hopefully we will maintain good control with this strategy.

For about 20 minutes I even had a Christmas break - with the new chemo to start AFTER Christmas. I was pretty jubilent, however, due to the chemo bookings, it was impossible and I had to start mid-January or today. Since my oncologist did not feel it was wise to wait until January, I went ahead and had the treatment today. So, no Christmas break from chemo!!!!!

However, the scan news is still pretty good and we are grateful for that.

I hope you are all enjoying the season, with all the good times spent with family and friends and, of course, all of the good food!

Joanne

"Tis the Season

2007-12-06T13:00:00.000-08:00

Hello all!

Not much is new with me, which in my world, counts as GOOD NEWS! Today is a day that I would usually be back at the cancer clinic, getting more chemo, but as you already know, I have had my lifetime limit of Adriamycin related drugs, and so I must switch to a different chemo. And, we've just had a little delay getting a CT scan, I guess they are very backed up.... so I am having a few days chemo "Vacation" .......

I will be having the CT on December 12, and then I see my oncologist Dec. 14. Based on the CT results we will decide which drug to try next and also when to begin the new regime. Of course I would love to have the Christmas holidays off and chemo free, but the truth is, that I am content to do whatever I must do, so if that means more chemo immediately, so be it.....

I'm feeling a little better - I've finally had that massage therapy and it worked miracles for my shoulder and back pain. I will definitely keep that up and hope for a good resolution to the muscle pain. I am about the same in the breathing department (which means that I continue to be fine while I am sedentary, but very short of breath when I try to do even modest activity, like walk across the room.).

Believe it or not, I am really enjoying the Christmas season. I am so blessed because so many people are looking out for us..... My friend Anne and my mom decorated our house and put up the tree..... Mom and my aunt (and friend) Peggy have been baking Christmas cookies for us (and I find this a huge gift and relief since I do still want to make Christmas as "usual" as possible for my kids. The internet has been my "mall" for Xmas shopping, and between Gord and mail order we are doing well there......Our tree is in my sunroom this year, and so my surroundings are very very pleasant. I wish I could be more active in the preparations as it is somethign I've always enjoyed, however, when I remove that from my worry list, I'm having a fairly perfect Christmas season. One great thing about this time of year is that it is EASY to find joy in something on every single day....... these "todays" are indeed "sweet".........

I will keep you posted with the results of the tests and the next plan for chemo. In the meantime, I certainly wish everyone a joy filled holiday season.

Joanne

Grey Cup

2007-11-26T09:23:00.001-08:00

Good thing Darryl and Dad were on hand in Toronto to guard the cup before it's fate was sealed and it heads BACK TO SASKATCHEWAN!

It wasn't a pretty game, but the Riders won, and all of Saskatchewan has gone nuts. It is very fun to be around all the excitement.

Go Riders Go !!!

2007-11-24T19:01:00.000-08:00

This child is no relation to me, but rest assured, I have photos (similar) of all of my kids in Rider Gear, sadly, they were all taken in the dinosaur age of FILM, and PAPER...... hence I'm not sure how to get them posted.....

Anyway, you get the point, this is kinda how we do it here in Saskatchewan.... we are crazy for our pro football team, even when they are not winning (which is usual), but we really go nuts when they, say get in the play-offs (you should know that 3/4 teams get into the play-offs)...... Glory of all Glories, we won the west this year, and on Sunday will play for the National title, the Grey Cup......

It's exciting to be in Regina right now (really, I'm not kidding), the entire city (well, I'm guessing it is the entire province) is on fire with Rider Green........ The game is in Toronto...... my dad and Darryl are actually THERE (Hello boys, hope you are having fun!) It's a BIG DEAL around here.

Joanne

P.S. on me..... I'm doing OK, I won't be attending any Grey Cup parties, but I am recovering from the last round of chemo, which kind of knocked me back a bit. Still working with the back and shoulder pain .... I begin massage therapy Monday and am hoping that will help. I think I spend too much time in bed, although that is just the reality at the moment. Anyway, I'm hanging in there.........

Beauty

2007-11-17T13:28:00.000-08:00

I received this beautiful orchid plant back for my birthday October 19 (which is when this photo was taken). Amazingly, it is still alive, fresh, unwilted, and every one of those little buds you see has blossomed into another beautiful bloom. Just amazing. I received it from my Aunt Lorna Mae and Uncle Tom, and I am especially thinking of them and all of their family this weekend.

It is a cold, snowy, grey day here, not what could really be consdered beautiful, but I find that these days, when I wake up, almost every day looks beautiful to me, maybe that is one good thing about being in somewhat rough conditions.

I did have chemo on Friday (good news, I recovered from the pnuemonia enough to go ahead)..... it was my 8th of that drug mix, and likely the last, as a body can only stand so much of the one drug. It's a little scary for me as I am at least staying stable on this one..... fear of the unknown is always hard to cope with. However, I always know that no matter what, there will be beauty to see in every circumstances.

Best wishes to all of you - I'll be laying low for awhile, just the usual post-chemo recovery, and I am sad to report that I am still trying to manage a very painful back and shoulder. I begin massage therapy on Monday, and am hoping that will help or at least find what might be exaggerating the pain I've been having in that area all along.

Here's to the beauty all around us, and in each of us. Joanne

Doing Well

2007-11-08T12:12:00.000-08:00

This was me, from several weeks ago, when Mom and I were making pesto from the basil we grew in our front yard! I was all delighted to be up "cooking", but unfortunately, the trend did not continue, as you all know, I've had a few challenging weeks lately.

Anyway, I am doing pretty well now, recovering from the pneumonia. I am still quite tired but mostly I feel pretty OK, and the pain I was having is now under much better control, I'm taking more morphine now, and it seems to be doing the trick !

Good news from the whole pneumonia/hospitalization thing - the scans showed that the disease is still stable! Also, when I was sent to ultrasound to drain the fluid in my lungs (to see if it was infected), there was not even enough fluid there for them to drain! Considering that a few months ago I had a massive pleural effusion going on there, it really shows the success of the chemo I have been on. I'd be even happier if I was able to be up and around more, doing more "normal" things, but I must say that once I accept the limits of my fatigue and breathing, life is really very good.

Michelle and Craig are coming home this weekend for the long weekend, and we are excited to be seeing them again, looking forward to a nice family weekend.

Best wishes to all of you, and thank you for your continued interest in me and my well-being!

Joanne

Happy 16th Birthday Brian

2007-11-03T12:45:00.001-07:00

Gord and Brian are headed out to the last "Riders" game of the season. It's a "Brisk" prairie day today, hence the numerous layers of clothing!

And yes, it is hard to believe that my "baby" turns 16 today. I am so proud and grateful to see what a really wonderful young man he is turning into. He is intelligent and thoughtful and he is coping very very well with the stressful circumstances life has already thrown his way. He also has a very quiet and almost dignified way about him, which he definitely did NOT get from me, but it is very rewarding to observe anyway!

I'm very grateful to be home from the hospital on his birthday, an unexpected gift for me !!!

Cheers to all, and thanks for all the good wishes!

Joanne

Home From the Hospital

2007-11-02T21:57:00.001-07:00

I wasn't expecting to be discharged before the weekend, however, my blood counts rebounded and my fever has been eliminated, so here I am back at home! While in hosptial I received a couple more units of blood, as well as the IV antibiotic, and I will continue with oral antibiotics for several days.

My next chemo will be pushed back by a week to give me extra recovery time, so I get a little bonus "break" from the chemo grind.

Not much else..... I'll be resting lots and laying low while I recover from this latest little bump in the road !!!

Joanne

November 1, 2007

2007-11-01T18:28:00.000-07:00

Hacker Gord is back with a new message from Joanne.

Joanne went back to hospital on Tuesday night with an elevated temperature. After a night of waiting in an isolation room she was admitted to the Cancer ward at Pasqua Hospital on Halloween morning. After several tests and several more hours of anxious waiting, we finally found out that she has pneumonia. Luckily it was caught and treated early (even before it was known exactly what it was). There are only a couple of small spots so things aren't as bad as they could be. She is resting well and hopes to be home soon. Unfortunately she will have to stay in hospital for at least a few days.

Thanks to Eileen for all her help.

Hacker Gord

Every once in awhile there is a tiny snag.....

2007-10-24T10:31:00.001-07:00

Hello to all, and thanks to all of you for your continued support. I always get a thrill when I realize how many of you are out there checking in on me !!!!

I'm just now getting through the "worst" days post chemo (I had Myocet/Cytoxin #7 last Friday). I've begun the GSCF shots (Neupogen) and generally the remainder of the cycle goes smoothly.

However, I have hit a bit of a snag this week. For the past week or so I have been struggling with extra pain in the area of my collapsed lung. I've been trying various things to get it under control, but it hasn't really been working, and unfortunately, I was not aggresssive enough with my morphine. So I had a little pain crisis of sorts this week, and have really had to get back on track to get on top of that pain.

There is nothing (additionally) wrong with me, and in fact, my scans and physical exam in my lungs are good. But I still have pain, and so I have been getting help from my homecare nurse and my doctor. Hence, you may have noticed (both on this blog and in "person") that I have been sort of quiet. (Pain really sucks) But, I am getting on track - this basically means that I have to take more morphine. I am improving, and I'm hoping that we'll have this all sorted out in the next week or two...... At any rate, it is NOTHING TO WORRY ABOUT....... Every day of living and managing a dynamic and life threatening diseasae can bring new challenges, that's all..... sometimes it's easy to forget that!

Otherwise, my family is also "stable" !!! Michelle and Craig are thick into mid-terms and assignments.... Brian continues to do well in Grade 11. Gord is taking some courses for the next little while, but he also continues to enjoy his job here in Regina. And my mom and dad help keep our operation running, I'm not just sure what things would be like without them, but since we do have that amazing level of support and love, we are able to just keep on living, and living pretty darn well too!

Cheers to all! Joanne

Stable !!

2007-10-18T10:01:00.000-07:00

Well, the results from my most recent CT scan (Tuesday) show that there has been no significant change since the previous scan. Given it was only a 6-week interval, rather than the usual 3 months, my oncologist considers this a very good result. Also, my lungs are sounding improved and there is some evidence of functional improvement. He was very happy with this results.

So, while of course I would rather see continued shrinkage, "stable" is also very good news. In fact, my oncologist suggests that we may not see further shrinkage from this drug, and that continued stability is a good outcome. I am also glad that the cancer continues to be limited to my lungs and internal lymph nodes, there is no evidence of any further spread. I'm not sure how significant that really is, but it makes ME happy.

My heart is also still in good shape and so I will have two more treatments of the Myocet + Cytoxin and then there will be a discussion as to what to do next. It will likely be a switch to a different chemo drug (Navelbine was mentioned), but we will know more at that time....

The chemo room was full today, and since I did not have a treatment booked (pending results of scans) I have a day or two "off" and will return for my next treatment as soon as they can fit me in.

Thank you so much to all my friends and family, and acquaintances and colleagues who continue to check in on me through this blog. And for all of you who continue to think about and pray for me and my family, your warm thoughts are appreciated and it helps me to stay strong and to keep my hope strong.

Cheers to all - Joanne

Thanksgiving

2007-10-10T12:11:00.000-07:00

Well, I hope that everyone had a wonderful Thanksgiving weekend. We certainly did. Both Michelle and Craig were home for the weekend, and we had a wonderful time together as a family again. My mom cooked a spectacular meal, which was enjoyed by us as well as my Aunt, Peggy and 3 of her kids. My grandfather was also well enough to attend, which was really amazing and wonderful. Unfortunately, I am the one who didn't make it to thanksgiving dinner.... that day I had a lot of bone pain (side effect of the Neupogen shots) and I just wasn't able to get enough morphine in me to be able to move comfortably AND be lucid. Anyway, that was small detail, I still enjoyed the entire weekend.

We are all very saddened to hear of the death of my cousin Patricia's husband, John Sinclair. One of Patricia's aunt's also died recently (as it happens this is also the mother of one of my friends and fellow book club member, Michelle) My heart goes out to Pat, Michelle and their families as they cope with these deaths.

Things are stable with me. On Thursday I have the MUGA (heart) scan, next week is the CT. The worst of the "chemo" crap side effects are mostly over, and I feel pretty decent.

Scans coming up

2007-10-03T11:03:00.000-07:00

Well, I just found out about the upcoming appointments, so I thought I would share them here....

MUGA (Heart) Scan - October 11

CT Scan - October 16

The results of these scans will determine my next treatments......

I'm hanging in at the moment, feeling OK as long as I don't try to do too much. Althought forward progress is slow, I am NOT GETTING WORSE, which is actually quite a good feeling! I am passing the time by reading, needlework, "Emailing", and keeping in touch on the computer. And, my great family helps me pass the time with movies, other TV shows, lattes and other treats. All in all, I am doing OK, and I will check in as soon as I can with any other news!

Chemo today .....

2007-09-27T12:49:00.000-07:00

Well, I went in for my 6th treatment of Myocet + Cytoxin, and I have a couple of hours before the side effects start setting in. I have been on chemo now for most of the past 18 months. What this means is that my body takes a little longer each time to recover from the "assault" ... it isn't that each treatment makes me sicker, just that my body isn't as able to respond and it takes longer and longer each round..... So, based on my other cycles, I would predict that I will not be back at the computer for awhile !!!! I will try not to let it go 2 weeks again, like i did last time..........

I had a good check-up. My oncologist says my lungs sound excellent (his exact words), and there is no additional fluid that he can detect. I was delighted to hear this, since I've actually been coughing quite a bit lately, of course I was worrying a little.... but it appears that my lungs still sound to be in good shape.

After this chemo cycle, I will have more scans - a CT scan to check the disease progression, and a MUGA scan (to check for heart damage, a possible side effect of the type of chemo I am on). After these scans he will decide what is next, but it will likely be another 2 rounds before switching to a different drug....

That's all the news for now. Otherwise, everyone in the family is well and coping pretty well right now. Cheers to all.

Joanne

Not much new !

2007-09-20T10:50:00.000-07:00

No news is good news - I've just gotten through the tougher parts of my 5th cycle of this newest round of chemo (Myocet + Cytoxin), and am back to feeling OK. I had a blood transfusion on Monday as my hemoglobin had again dropped too low (common with chemo), and so my blood counts should now be in good shape for the next little while.

I still seem to need the oxygen, the morphine, the wheelchair and the bedrest, but as long as I do all of these I actually manage very well, and feel quite well on a day-to-day basis. Thank goodness for my mom and my family, because they manage to see that I have the best life I can from my little world !!!!!! My mom continues to be here with me whenever Gord or Brian are away from the house.

So, all in all, things are stable and that is great !!!!

CT Scan Results

2007-09-06T15:24:00.000-07:00

Well, it is pretty good news. The CT scan showed an excellent partial result - what this means is that the cancer is not gone (that would be in the miracle category), but it is reduced from what it was back in June. Some of the spots have disappeared completely. And most of the rest of them are smaller than they were. The largest nodule in my lungs was 1.3 cm x 1.4 cm....it is now 0.9 cm x 0.8 cm. Also the mediastinel nodes are reduced in size. And, finally, there is no new cancer, no further spread. My liver, abdomen and bones (in that area) are clean.

I still have fluid surrounding my lungs, but it is greatly reduced. And my lower right lung is still collapsed.

So, today I am filled with gratitude. Chemo has been successful, and it will continue, likely for four more treatments with this particular drug combo, then perhaps with a new combo. Of course, with this disease, things can change on a dime, and there are no guarantees, but for today, the result is very good, and we are very happy and very grateful.

I had a chemo treatment today, so will now hunker down to get through the next few days. But it is all worth it when the treatment is working and giving me more time. What a great gift.

Thanks to all for your continued love and support. Maybe those prayers are working, so keep those up too. if it is not too much trouble !!!!!!

Joanne

Checking In.....

2007-09-05T11:54:00.000-07:00

Happy days are here in Regina. For the non-Canadians, our long suffering football team (Saskatchewan Roughriders) are having a #1 season for the first time in about 30 years........ Above are my niece and nephew, Kate and Niall when they attended Sunday's football game here in Regina.

No news yet for me. I had the CT scan yesterday and it went very smoothly actually. I will find out the results tomorrow when I go in for my next chemo treatment. I will post about it as soon as I can.

Cheers to all. Go Riders Go....... Joanne

Another "weekend" moment

2007-08-28T18:56:00.000-07:00

The above photo is from the opening ceremonies... my sister Kelly (middle) and niece Heather (right) represented 2/3 generations participating in the walk..... the flag they carried has the names of all of the people who walked the 60 km.

I continue to be the same - recovering from chemo, with CT scan next week, Sept. 4.

And here is my team (and their fans!)...... emotions are high for me as I think about what they have done in my name.

Weekend to End Breast Cancer

2007-08-18T11:50:00.000-07:00

This is my mom and I and these are the same T-shirts that the walkers are wearing right now as they walk in Vancouver's rainy weather. The front says "Her Courage gives us strength" and the back says "I am on Joanne's Team 2007" I guess we are the honorary walkers.....

I am on Day 3 of Chemo (Cytoxin, Myocet), and feel the typical crappy chemo feeling, but nothing unusual, so all is well. The good news is that there is slow improvement in my lungs. My oncologist says my lungs sound much better, that much of the fluid surrounding my lungs is gone. The right lower lung is still collapsed, and I am still on bedrest, oxygen and morphine 24/7, but I also notice an improvement in my breathing, so really, it is good news.

I guess I won't be scanned for a couple of weeks yet..... I will let you know.

Joanne

"Chapters" outing

2007-08-11T11:42:00.000-07:00

Well, I made it, thanks to my mom, and a good time was had by all! Although it certainly tired me out, I enjoyed at least an hour wheeling around Chapters, and of course, refreshments via Starbucks.

This week leads up to my next chemo treatment (Thursday) and I am feeling relatively stable. Unfortunately, I still need the oxygen, and I am unable to walk any distance without distress, even with the oxygen. HOWEVER, as long as I use the oxygen, and either stay in my lovely hospital bed, or wheelchair, then I am comfortable and I enjoy my time.

I haven't yet heard about the CT scan, although it should be coming up soon! I'll let you know.

Thanks to all of you faithful blogger responders, it really is a treat for me to see all of you who follow along with my journey. It makes me feel very fortunate to have so many of you in my life.

Joanne

RCMP kids

2007-08-08T08:48:00.000-07:00

This is my son (Craig) and my nieces Heather, Laurel and Holly at the RCMP Heritage Centre here in Regina. Kelly and the girls were here in July. They had lots of fun touring around Regina, believe it or not.... went to all kinds of places that a person who lives here never does!

I am doing OK..... am now in the second half (the good half) of the chemo cycle. Some days are better than others, but for the most part I am breathing comfortably. Still have not made it to Chapters or anywhere else..... good thing my bed is in my sunroom.... makes it tolerable to be in bed 24/7 as it is a very lovely space and I might be driven crazy if I was off in some dark bedroom........

Thanks all for your continued support

Joanne

Happy 50th Anniversary to Arnie and Jenny Schweitzer

2007-08-04T13:23:00.001-07:00

Last weekend, Gord's sister Laurelle, his brother Bret and he held a tea honoring his parents' 50th wedding anniversary. I was sorry that I was unable to attend, but the photos look wonderful and I think that all their hard work paid off with a nice event. They also had extra special help from their cousin Martha and their aunt Lorraine.

The actual anniversary date is July 26. What an achievement - 50 years of marriage!

RE: Me - I am fine, the blood transfusion worked it's magic and I am breathing easier. Just recovering now from the chemo; it is my goal this week to actually go somewhere on an outing, maybe even just to Chapters. Have wheelchair, will travel. So far I really don't have the energy for it, but I am HOPING !!!

This last photo is of Gord and the kids with their grandparents, they all look beautiful, in my humble opinion!

Blood Transfusion Today

2007-08-02T20:48:00.000-07:00

Being a permanent cancer patient means there is always something on the go. Well, my hemoglobin levels took a dive this week, and so I had a very unplanned blood transfusion today. Although it took all day at the cancer clinic, it is really not a difficult procedure, and I am assured that I will be breathing much better virtually immediately.

It was a long day though, so right now, I'm very tired and I can't really tell - hopefully I will wake up tomorrow full of beans and ready for another day. Otherwise, all is well, I feel pretty OK, and the Neupogen is keeping my white blood cells in good shape.

Thanks to all for your continuing support...... Joanne

Weekend to end breast cancer 2007

2007-07-28T12:18:00.000-07:00

This is not a pitch for donations.... I know that many of you here have already donated, or you have many other worthy causes which you support.

I just want to honor my "team", the 2006 version is shown above - my sister in law, Karen, my brother Darry, neice Heather Sherlock (then age 12) and my sister Kelly. This year, they are joined by my brother-in-law Gary and by my neice Holly.

I am humbled and astounded that they are willing to make the effort both to raise the large sum of donations required ($2000/pp) as well as making that long long walk, rain or shine.

Please read their stories at the Joanne's team pages of the walk...... http://www.endcancer.ca/site/TR?team_id=24796&pg=team&fr_id=1203 I know they inspire and touch me.... and if by chance you have not made a donation, I think the grown-ups are doing fine, but the girls are a little behind.

Thanks you to Holly, Heather, Kelly, Gary, Darryl, Karen. You are heroes to me.

Joanne

P.S. Day #3, Round #3 of chemo, a feel lousy, but sentimental and sappy sort of day!

To the birds

2007-07-26T19:41:00.000-07:00

About a month ago, Dad and Brian put up this bird feeder just outside the window beside my bed in the sunroom. Mom keeps it stocked and because this particular window does not see any direct sunlight, I can watch the birds all day. Brian made this bird feeder several years ago, a primitive, but very enjoyable result. And I have enjoyed this, and we've tried to identify a few birds, etc.....

But of late, the bird feeder has become a big source of stress. The squirrels (whom I previously admired) are really just little scavenger piglets, who have no fear of anything, animal, human or otherwise. They make their way up that skinny pole, wedge their "pleasantly plump" carcas onto the shelf of the house, and commence to stuff their little faces with as much bird seed as possible until we manage to chase them off, no small feat. And while the little birds scrap with each other, it's at least a fair fight, not so with Mr. Squirrel, nothing can stop him. AND, we now have a larger black bird who spend a few days perched on top, but has since figured out how to hunch on the lower shelf and help himself, also scaring all the little birdies.

Sheesh, and I imagined a peaceful nature scene, I think I am really more suited to indoor nature, the realities of the out-of-doors never cease to raise my blood pressure.

Anyway...... it's Day 1 of Cycle 3 of chemo. Time for me to hunker down and get through, and this usually lasts through to about Day 5 - at which time I start getting Neupogen shots for my white counts, causing a bit more pain, etc.... Anyway, I will not likely be available. My usual survival strategy is to nap in between eating and sleeping. However, I will emerge, after a few days, hopefully unscathed, and I will check in next week.

My continued thanks for your lovely and thoughtful and beautiful responses on my blog, I hope no one feels obliged to leave a comment. However, I must tell you how much it lifts my spirits and my heart to read your kind thoughts.

Love to all, Joanne

Summer at 26 Selkirk Crescent

2007-07-18T15:06:00.000-07:00

You can't really see much of the new (Beautiful) aggragate concrete driveway in this photo, but you can see the beautiful flowers that my mom planted for us, and although the yard is still recovering from the sewer line damage last fall, it looks pretty inviting out there!

Not much to report for me. I have been having pesky fevers that hover around the "threshold fever" and this creates stress and uncertainty and a lot of calls to my medical team, but so far, I have remained out of hospital and doing OK. I am still fairly weak, and my energy level is so low it is hard to describe. Even short phone calls tire me out, but I am managing those not too bad, so if anyone would like to talk for a short time, I think I can manage that (depending on the day). Visits are still mostly not an option, although a few family members visit, that is my limit at the moment.

Still very happy to hear from everyone either through email, this blog or by snail mail. I appreciate your continued good thoughts and prayers.

Joanne - Look (below) at our "crop"!!!

Michelle's favourite friends........

2007-07-14T10:49:00.000-07:00

Well, if any of you have been around Michelle in the past couple of months, it is a fair bet to guess that you have heard about Adam. So, here is a photo.... above are Adam, Michelle and Heidi, sitting in our sunroom here in Regina.

Things are pretty calm right now around here. Everyone is back from California, and they all had a great time. Michelle was a little sick, and she had a bit of a rough journey home, but otherwise, they are all so glad they got to go to the wedding.

I am about the same... The first (and worst) week of chemo round #2 is over, and I'm heading into the "good week", so that is very good, from my perspective. My breathing is roughly the same, the right lung is still collapsed and still surrounded with fluid, so I continue to manage the pain with morphine and the breathing with oxygen and by a very sedentary lifestyle. (this translates easily as I am basically spending 24/7 in my hospital bed.... what a gift that is.... is is adjustable so I can always get it into a comfortable position. My temperature has been normal (yippeeeeeeee) and my appetite and overall "how do I feel" is good.

That's it! The news this week is very "ordinary" and that is very WELCOME.

Joanne

2007-07-08T10:43:00.000-07:00

Here is my lovely family enjoying my cousin Sean and Molly's beautiful wedding at Carmel-by-the-sea, California. Darryl has been sending Mom and I photos, and we have been enjoying watching events unfold by photo! It looks like it was a truly happy and wonderful event. They were married on 7-7-07, but it doesn't look like they need extra luck to enjoy a long and happy life together, I think they have what it takes right now!

Michelle flies back to Winnipeg to get back to her job (lifeguard at Fun Mountain water park). Gord and the boys are headed with Peggy and her kids to spend a couple of days in San Francisco. My boys will then head straight back to Regina. I'm so glad that they've had this wonderful holiday and were able to spend more family time together with the extended family. We all feel a tremendous amount of support from these loving relatives.

As for me, it is Day #4 of my second chemo cycle of Myocet and Cytoxin. I should feel less of the effects of that in a day or two.... Starting Monday, I will be receiving shots of "Neupogen" to stimulate my white blood cell production..... this should prevent me landing in the hopsital again with low blood counts.... and it will make me less susceptible to every little germ or bug around. Good news.

I feel about the same, the shortness of breath and pain from my collapsed lung is about the same, but my homecare team is really helping me get my medication schedule sorted out so that it is as best it can be. I do not feel worse, which I choose to take as a good sign, but I am still not mobile, need to use the oxygen, my wheelchair, and my hospital bed to keep me breathing in comfort.

However, I am getting used to this new reality. It really is a miracle how adaptive we all are, when circumstances leave us no choice. This has been a very difficult transition to make for me, physically and emotionally, and I am grateful to all of you for being so supportive, and respecting my needs at this time.

Cheers for now - Joanne

"What can we do to help? "

2007-07-03T11:01:00.001-07:00

It has most certainly been the most stressful, trying month of my life. And a great big thank you to all of you wonderful supporters who have been asking "What can I do?". For the most part you have been given a non-answer. We were so caught up in trying to get through each day, that I, for my myself, could not concentrate or imagine what another day might be like, and what might help.

Just so you know, I am completely grateful for all the support we have received; we need no other "thing". For those that wish, please know that everything you have done is "good enough"... we feel blessed and lucky and loved.

However, we keep being asked, So.......... I thought I'd give a little status update.

Gord and the kids have gone to a family wedding in California. And, in case that seems strange or selfish to you, please be generous in your thoughts about Gord and the kids. They are under tremendous stress, and it was my request that they go, enjoy and learn to be a strong family unit in a happy setting, even when times are difficult, while I can still enjoy from my comfortable bed.

My wonderful mother is for all intents and purposes my main caretaker. She is now with me virtually 24/7 and she helps me with all the day to day things I can't manage as well as being a huge emotional support that I just lean on shamelessly. My dad keeps the homefires burning, and also runs all manner of errands, and he sits with me when my mom is not around. That is going well, and at the moment, my mother does not want help for herself or anyone. Not just yet anyway.

At the moment, the truth is, that I am not physically or emotionally able for real visiting. The best I can offer anyone who wants to come to Regina anyway, is short (i.e. 30 minutes) of visiting me lying in a bed. And we are not in any way able extend the hospitality that we orinarily enjoy sharing with you, our friends and family. We cannot have anyone staying at our home. I hope this improves, but right now, it is the truth.

Anyway, thanks to my Aunt Lorna Mae who had this excellent suggestion: If you want to do something for me, please go and donate some blood. I had 2 units given to me this past hospitalization and they have helped me to feel so much better. I expect I will need it again. If you would like to do something concrete, please consider this. It will help me and many other people. And since, at this exact time, there is nothing physical that I need, it would be an ideal way to help in this way.

Especially all you B+ types (that is me)...... a rarer kind (just like me)............

Thanks friends, for considering this unique way to show support of me.

At home again

2007-07-02T17:46:00.000-07:00

I am back at home again, and hopefully it "sticks".

After my kudos to our health care system, I can safely give my one current big beef, which is the entire ER system. Doesn't matter where I live or which one I go to, they are all a big nightmare, and at all costs I would like to stay out of them. Hopefully my temperature cooperates.

I will write more as I am able. Right now my fatigue level is high, my pain is managed, and my breathing is much better managed as well. I am quite comfortable, but I am also emotional and overwhelmed, and I still feel like I don't know what will happen next.

My next chemo treatment is this Thursday and so I will be gathering my emotional and physical resources to get through that. Right now I am not very capable of doing much by way of visiting or talking to people. I hope that I find that that energy returns to me, but in the meantime, I'd like to express my appreciation for your continued warm and loving responses here on this blog. I will appreciate it if you continue to communicate in that way.

For a more private message, my email address is jschweitzer@sasktel.net. I am not at the computer regularly, but will do my best to keep up.

Joanne Update...

2007-06-29T17:53:00.000-07:00

Hello,

Gord is back in Winnipeg today, helping Craig move out of his apartment and return back to Regina for the summer. In his place, Joanne asked me to post a message on her blog. For those of you that don’t know me, I am Joanne’s brother, Darryl.

Joanne is still in the hospital but I am glad to report that she is stable and improving. She has had a tough few days but her blood counts are improving, her pain is being managed and her fever is under control. Assuming that she remains stable, she will likely be able to return home in the next few days.

Her spirit and determination are as remarkable as ever!

She says the food is fine and she is kept well stocked with dark chocolate, not to mention her daily venti, extra hot, no foam, 2% latte.

On behalf of her family, thanks to all of you for your ongoing support.

Hacker Darryl

Joanne moved to hospital

2007-06-26T20:19:00.000-07:00

June 25, 2007

Hi I've hacked into this blog to provide an update on Joanne's condition.

Today Joanne was admitted to the oncology ward at Pasqua Hospital. She is having some problems with intermittent fever and to be safe she has been admitted and is on I.V. antibiotics.

She is still in pain as the plural effusion has increased again but they are medicating the pain. She is resting comfortably in a private room but visiting privileges are limited.

Joanne's hemoglobin is very low so she is getting a blood transfusion either later today or tomorrow.

For now we will both be away from the house during the day and at the hospital in the evening so we won't be answering the phone. Please correspond with us using this blog.

Hacker Gord.

A week of changes can change your life!

2007-06-21T16:55:00.000-07:00

This is my new view, and I am lucky that I have such a beautiful sunroom to have such a good view in!

Well, I will try to keep this brief, but it has been a very incredible sort of week. Surreal, really,

So, at last post I had a pleural effusion drained and was recovering.

Well, something went sour with the pleural effusion drainage and a small part of my right lung collapsed. The drainage was malignant, which is just means that there is now an easy vechicle fo the spread of cancer elsewhere as fluid tends to move around. I still have fluid on my lungs but the prioirity was to do chemo immediately to try to improve the situation in the lungs.

Due to the pain of the lung collapse, I have been started on a morphine program. And due to the shortness of breath increasing and becoming worse (lung collaspse), I am now on Oxygen all the time and at home.

Today a hospital bed arrived, so I can sleep in a better position for my lungs. Also, we received a shower chair and a wheelchair. Oh and Homecare is providing me with anything we need.

I have suddenly moved from being independent to being not terrible mobile. And I am supposed to view this reduced mobility as saving my energy for things I really want to do. So, that's the view I am trying to take.

My fellow cruisers - Karen and Kelly, came here this week, and they are helping to get all this equipment settled and to make it as nice as possible for me. Mom has been here 24/7 since Gord is out of town at a course. I feel very supported as I travel this challenging path.

This has all been very unexpected and so it is actually difficult to comment on with any form of wisdom. We just keep getting through each day and are not looking too far ahead. My friend

Janice is bringing Michelle home for a visit next week, and Gord will get Craig after exams, it will be quite an adjustment for them to see me too.

THE one reflection I do have this week is the excellent care we have received from our much maligned "system". We have been treated with dignity and respect and with kindness... and SPEED.... I cannot imagine getting better service than we have had this week. It has been unbelievable and true cause for thanks.

Best wishes to all..... Joanne

"Progression" and "Pleural Effusion"... two bad news words for a gal with Stage IV cancer.

2007-06-12T14:59:00.000-07:00

As I mentioned last week, I was not expecting great news from my CT scan based on the fact that I have been having increased symptoms. The only bit of good (?) news this week is that I was correct!

In fact, my CT scan showed some new spots of cancer in my lungs. Although the drug was holding the existing spots at bay, and no new areas have been affected, this is still NOT GOOD ENOUGH, and a treatment change is in order.

I will begin a new regime tomorrow, Myocet and Cyclophosphmaide. Myocet is an encaspulated version of Adriamycin, a very powerful drug I had way back in 2001. It is a tough chemo, but the encaspulated version is designed to stay in the body longer, and seek out cancer cells, leaving fewer 'normal" cells damaged. We will see. I expect a bit of a tough ride.

Pleural Effusion: fluid has now built up in the pleural cavity (which surrounds the lungs). This is not uncommon with advanced cancer in the lungs. Yesterday I had quite a bit of that fluid drained in a procedure called "thoracentesis". Unfortunately, my procedure did not go as planned, and they were unable to remove all of the fluid, which means I will likely have to have another one sometime soon.

So, it was quite a long, sad day yesterday. We have cancelled our mother daughter cruise which we were to take this weekend, and I will have a DIFFERENT kind of weekend ahead.

SO, that is the update, I wish I had better news to report. As always, we draw strength from the love, good wishes and prayers of our family and friends. The love and kindness shown to us really does help lift us back to our feet so that we can keep moving forward. Thanks you to all our wonderful supportive family and friends.

Joanne

A great photo from Montreal

2007-06-08T13:59:00.001-07:00

Isn't this a great photo of my cousins and aunt? Peggy is the beautiful bride.

Lovely Montreal

2007-06-05T20:57:00.000-07:00

I just returned from my cousin Peggy and Johnny's wedding in Montreal. And I am ashamed to say I do not have one picture to post, although I did have my handy and compact camera with me. Thank you to my brother Darryl who sent this amazing photo of one of the beautiful stained glass windows in the lovely Montreal Church where my cousin was married.

At any rate, it was a beautiful event, a beautiful couple, and I and my family rejoice with this latest marriage. It was especially gratifying for me to be able physically to attend the event. Although I missed some major action, belly dancing included, I feel lucky to have been present to share in the day and to see so many of my amazing family members.

For me, it is action week.... tomorrow (Wednesday) I have the CT scan that will determine how I am actually doing. Given my own assessment of my physical state, I am pretty sure that the best I can hope for will be a stable situation. I fear I am too symptomatic right now to enjoy any reduction in disease. However, the CT will tell the story, and I meet with my oncologist Monday to determine next steps.....

The reduced dosage of Xeloda has provided relief from pain in my feet, although the skin is cracked and peeling, I think it is improving. So that is a good thing! And, today was my last day of Cycle 6 of the drug, so the next week "off" chemo is a welcome thing too.

As the saying goes, I am "hanging in there".......

Cheers Joanne

ALthough I look bored and morose........

2007-05-28T21:56:00.000-07:00

I actually was quite excited about this beautiful flowering plum tree in our front yard. It's exciting for us to be in a more developed yard, I am enjoying the squirrels and birds who also share our yard. However, we have considerable work to do, removing an overgrown elm tree, lifting up the deck, etc....etc..

Right now the major project is the driveway which does NOT look like the photo above...... it has been completely removed and the entire thing is being redone. Thanks to my dad (Jim Condon) he has lined up reliable contractors and is the chief superintendent of the project. If not for my dad we'd probably be living with the crappy temporary stuff for longer than we should, so we are VERY grateful. Our house will look stunning with it's new concrete!

Michelle was home this weekend and we had a quiet and lovely time.

For me, same old, same old.... Round 6 of Xeloda, the side effects do accumulate so I have more challenges than before. I also have a nasty cough which either lingers from my viral infection, or is the cancer raising it's ugly head again. I honestly cannot tell which it is, but my functional ability is quite limited at the moment.

However, as I may have mentioned, I live a life filled with love, and I have many loving family and friends who make it possible for me to enjoy every day as normally as possible. It makes me realize just how lucky I am, although I realize that is going to sound like a ridiculous idea, given my overall circumstances, but it is honestly what I feel.

So cheers to all and I hope you are enjoying spring, my favourite season! Joanne

Me in my sunroom

2007-05-21T22:02:00.000-07:00

This is pretty much where I hang out these days.... we have a lovely sunroom, and recently added "real" (translated = comfortable) furniture to it, and it is pleasant and lovely. Ideal spot for reading or my current activity, needlework. I am still recovering from that darn virus and my activity level is very low. Staying in one spot quietly, helps me to easy breathing, so, the sunroom is a real "gift".

I see my doctor on Tuesday (May 22), so I will add the results after I have them. I expect no changes. I am not better or worse, so my guess is that I continue to be "stable".... but I will be scanned sometime soon to see what is really going on.

Medical Update: things appear stable. I continue on Xeloda at a reduced dosage, since I have developed Hand-Foot Syndrome, one of the common side effects of the drug. Next CT scan will be in about 3 weeks.

Woo Hoooooooooooo the "girls" are cruising

2007-05-06T19:51:00.000-07:00

This was me within half an hour of boarding our Carribean cruise last December. And I am so lucky because I am going again in June!

Kelly and I got set on going on a "scrapbooking cruise" after we created Dad's birthday book, we got 'bitten' by the croppin' bug..... at any rate, we were all set to do a scrapbook cruise - with Mom, Karen Kelly and Joanne...... Sails from L.A. port and just 3 nights.... includes a day stop at Ensenata and cruising the rest of the time. Yippeee....

(OK, small detour, we couldn't make it on the scrapbooking cruise, but we are cruising anyway! We got a fantastic bargain on the fare, airfare, etc.... and we are GOOD TO GO.... Kelly is now the scrapbooking instructor, I am the cruise director, mom is the ultimate decision maker and queen poo-bah.... Karen will make sure we don't get arrested.... uh, Karen, of note in photo above, no glass bottles in the pool, could you keep control of your group, please!!!!

My health has been a bit of a disappointment, no change from last Monday. Side effects from Xeloda are accumulating, making some challenges.....

Anyway........ Get ready to cruise wity us!

Spring in Regina

2007-04-30T15:15:00.000-07:00

The boys are ready for the football season!

Well, I am recovering from the viral infection although the cold part seems to be hanging on, which is yucky, but managable.

I saw my oncologist today, and things appear stable, and I continue with the same treatment, same dosage of Xeloda. I will be rescanned later in May to see if it is still working to keep me stable.

Cheers to all, and thanks for looking in on me!

A New Week Ahead

2007-04-22T23:00:00.000-07:00

Well it was a tough week for me. A nasty viral infection certainly took hold and had me out for the count for several days. Likely it doesn't help that I continue to take my chemo, which also increases fatigue and general crapitis feeling.

I ended up on two antibiotics and the blasted fever continued on into Friday, causing me much angst, phone calls to cancer clinic, and some negotiating to save me an even more dreaded trip back to ER..... I should have gone Friday night, but in reality I could not face the Friday night crowd, so I packed up ready to go, then I stayed home, watched my temp, monitored myself and decided every hour what to do... and then near morning, the temperature just improved! Spent the rest of the weekend in bed, and finally today, I think I am on the mend!

So, this week is looking up! It's a new week, hence the spring like floral photo......And the good news? Well, despite tremendous amounts of hacking, coughing and nose blowing, I was able to breath relatively well.... So I think that is a good sign of things to come, at least that is my determination.

Cheers to all for a peaceful, virus free week. Wash your hands like maniacs, this last one hit all of us Schweitzers despite our OCD-like behaviors around the hand-washing.

Joanne

Detour - another blasted trip to ER

2007-04-19T00:25:00.000-07:00

Well, a very slight setback. I developed a fever the other night, and when you are on chemo, a fever is never ignored.

The above picture, of course, is generous, the actual number of medical personnel I came into contact with after 6 hours was actually very scanty and they weren't smiling either. Actually, the lab and x-ray techs were very cheerful, the rest, not so.

So.... a lousy night was spent in ER, while they checked me up and down for infection, x-rays, blood tests, and blood cultures, urine tests, etc.... All my tests came back perfectly good, but since I obviously have picked up something, I am on anti-biotics as prevention. ER is a terrible place for cancer patients, because you are not exactly an emergency, you are a "Maybe" emergency, and immune suppressed at that, so in danger of picking up all the crap floating around the emergency room. But that is the system and so that is how it goes!

We've all had a nasty cold and cough.... and the combination of cough with my lung problems has been particularly nasty. But, hopefully it will improve soon, and I am thankful it was nothing serious. The coughing is interupting my sleep tonight (that's why I'm up and on here!), but otherwise I "feel" very well.

My good friend Janice is here visiting me fromWinnipeg, what a treat....

And, Mom and Dad arrive home from the USA tomorrow! It will be great to see them back at

"home"...

Monday Update

2007-04-16T14:51:00.000-07:00

Seems like Monday might be a good day to try and update my blog and my "book of the week" (see link to the right of the page). I'll do my best..... that way you don't have to keep checking in....

So, on this Monday, well...... everyone in my house has been sick with quite a bad cold & cough.... Michelle and Craig too..... I seem to be spared the worst of it, but I do have a sore throat and a bit of congestion and extra cough (which sucks since that is also a symptom of my lung status, it plays with my mind).

Gord recovered quite well, but Brian has actually stayed home from school even after Easter Break, and is feeling really tough. So we are mostly laying low, watching movies and keeping it low key.

The U of M pair are in the midst of finals... I'm looking forward to seeing them when they are done!

That's it for now... Joanne

Scan results: Stable

2007-04-10T12:47:00.000-07:00

Well, that's the word: no change since the last scan. Although it seems odd, this is a "good" news scenario, since at the very least, the Xeloda is working to keep the cancer from growing. Of course, "better" news would be for all the cancer to disappear, but that is a bit of a reach for just 3 cycles of a gentler chemo. I do still have some symptoms (cough, shortness of breath) so this result is more or less what I expected, and I am very grateful that the disease has been halted, at least for the moment. AND.. everything else (liver, bone etc...) remains clean.

So, my oncologist (Dr. Chal Chal) is very happy with both the results and with my improved functioning. And I am doing better on a daily basis, just doing the ordinary things of life. He is optimistic for continued improvement, and will rescan after 3 more cycles.

So, I continue with the same chemo, Xeloda, same dose.... I will likely have a bit of trouble with my feet, but we will keep the dosage as high as possible for as long as possible.

Thank you to everyone who keeps checking in on me and for your posts, too.... I feel like a very ordinary person, just doing what each of us would do in the same circumstance, so I feel that praise is unwarranted and I can't really imagine you are talking about me! But it is so nice to see your responses.....

So, for me it is a time of gratitude and patience. "Hope is patience with the lamp lit" - Tertullian.

Cheers - Joanne

Shopping fun

2007-04-02T12:09:00.000-07:00

OK, this was a lovely, huge fitting room in Nordstrum Rack - designer section - where we learned about how some fitting rooms are nice and luxurious, unlike the dumpy variety we are usually in. Success all around, as all the girls (including Kelly) found a dress. The Sherlocks in particular will be stunning at upcoming weddings, graduations, etc...

And thank you to Loretta, who gave me a little shopping spree as a gift, what fun, and here is the proof that I really was in the store, and had a GREAT time choosing a gift. And yes, it was St. Patrick's Day, and we are nothing if not faithful to the wearing of the green.

This is my week off Xeloda, and I am quite sure that I am feeling better, people keep telling me I sound better, and I am certainly a little more active, which is very enjoyable for me. My feet have begun to hurt (as expected for the side effect called Hand-Foot Syndrome), but that will be managed with dosage, as long as the drug is working. That story will be told soon, as I have a CT scan on Thursday, and will know the results on Tuesday, April 10.

In the meantime, for Easter, Gord, Brian and I are headed to Minot, ND along with our friends, Anne, Chuck, Ryan and Chad. Michelle and Craig are unable to make it, but they were home this past weekend. Making a trip to North Dakota for Easter brings back many fond memories of all the years we did that as a family along with the Reidy family, so I will be happily thinking of that all weekend. Wonderful memories, I hope our kids have as much fun as we did back then, and the grown-ups hope to get a few hands of bridge in by the pool as well!

And of course, there is a Target in Minot, and who isn't happy just being in a Target store?

Happy Easter all... I will check in next week with the results of my CT scan.

Happy Birthday Mom and Dad

2007-03-25T12:17:00.000-07:00

We celebrated Mom and Dad's birthday a day early, on St. Patrick's Day, since Darryl and I had flights home on the actual birthday! The photo shows two of my nieces, Laurel and Heather, and my dad and mom.....

Thanks to everyone who contributed to my dad's 70th birthday "book"... it turned out really great and I am pretty sure it will be treasured.

Darryl and I had a great (short) trip to Phoenix to be there for the birthdays.... Darryl flew through Calgary so I had assistance for the flights, and that was great, plus, he then had the pleasure of my company !!!

Medical updates: I am in the middle of Cycle 3 of Xeloda....... feeling about the same, still some cough and shortness of breath and I need a lot of sleep..........

Upcoming: CT scan April 5, results April 10, keep your fingers crossed because all in all this is a tolerable chemo regime, probably the most "easy" chemo I have been on....

"Week Off" Xeloda.....

2007-03-12T12:55:00.000-07:00

It is warm and sunny in Regina, but NOT THIS NICE.... this was a photo from our Phoenix vacation last month...... the "boys" were enjoying the bumper boats....

Well, I have already completed two rounds of Xeloda, and although I definitely feel a bit crappy on the days I take the medication, it is very tolerable overall. And on this first day of my week "off" I am actually feeling quite spry for a change. I was even out for a few errands today after my bloodwork.

And it is great to be out right now in Regina, it is warm and melting everywhere, sunny and pleasant... likely temporary, but spring is in the air....

That's the update for this week, I'm hoping to continue to feel better.......

Joanne

Second cycle of Xeloda

2007-03-08T16:57:00.000-08:00

This is mom and dad's back yard in Arizona..... lovely and peaceful and warm!

I am just about through the second week of the second cycle of Xeloda. I can say with certainty that I am not feeling worse, and that is a good thing..... I think the coughing and shortness of breath might be improving, but I am still kind of limited in my activities.

Am hoping for continual improvement... it was great to see Kelly this week, she and I were working on a big "project".........also looking forward to seeing Loretta.... otherwise, it is more R and R for me, and am hoping for more functionality as the medicine continues....

Cheers - Joanne

Where there is a will............

2007-02-23T11:33:00.000-08:00

Have scooter, will shop......This is me in Arizona getting ready to shop at "Fashion Square" in Scottsdale (great mall as it happens). I was a bit of a menace driving the thing, but it got me around! I only hit a few shelves, cash register counters, etc...

Update from the treatment front: I am on the "week off" Xeloda, the oral chemo..... (it is 2 weeks on, 1 week off). So far, I feel about the same, I have not gotten any worse, so I am hoping that is a good sign that the Xeloda is working. I really need it to work so that I can get back on my "feet" again!

Cheers to all.... Joanne

A better way to receive chemotherapy

2007-02-16T19:22:00.000-08:00

This chemo (Xeloda) is oral.... I take two doses per day - here I am taking my morning dose in the Arizona sunshine, in mom and dad's back yard. Beats the "chemo room" in a heartbeat !!!

Chemo vacation is over!

2007-02-05T12:53:00.000-08:00

Well, apart from my lungs, I am in very good shape! But my lungs are a problem, and since they are somewhat necessary, I begin with new chemotherapy starting today.

Both lungs have numerous spots of cancer and they have increased in size, with the largest now being 1.7 cm.

The new drug is Xeloda (capecitabine) which is an oral chemo. I will take it twice a day for two weeks, then have one week off. It is known to be an effective drug in metastatic breast cancer, so hopefully it will work well for me. I will be rescanned in 6-9 weeks and will have bloodwork checked weekly to see how I am doing.

Not the greatest news, but not unexpected. I am allowed to keep my travel plans to Phoenix next week, so that is exciting. The effects of this drug are usually cumulative, so I should not have too many problems this first little while.

Take care all - Joanne

Met my new oncologist

2007-01-19T22:22:00.000-08:00

The photo has nothing to do with today's update, it's just me and Michelle (and Heidi) watching movies over the Christmas holidays...... none of the pyjamas shown came from Winners, although I have several lovely sets that have......OK, I've recovered from my dismay over the whole TJ Maxx/Winners debaucle, and am already softening the whole boycott stand - enough said.

I had my first appointment today at the Alan Blair Cancer Clinic in Regina. Gord and I met my new oncologist, and we both really liked him. He seemed considerate and smart, very up-to-date and very kind. Good combo for an oncologist.

So, I am no longer "in transition" but am officially a Saskatchewan customer for my treatment and care.

CT Scan next week... that will determine if I am "stable" or if the next chemo starts soon. All in all, it was a good appointment and on physical exam I score high marks.... so today was a good day, amazing what passes for "good" some days!

Cheers to all - Joanne

TJ Maxx, Winners and Homesense..... how could my "favs" do this to me???

2007-01-18T22:05:00.000-08:00

This is Heidi, our miniature shnauzer, wearing a lovely coat, which was a gift from my friend Donna. Donna's a shopping guru, very savvy.... maybe this very jacket put her in harm's way.... what to do, what to do????

Like many of you..... I'm a fan of Winners, Homesense, TJ Maxx, Marshall, etc...... a happy moment in trips to Phoenix was that first walk through a TJ Maxx.... ahhhhhhhhhh.............

What's a shopping girl to do now? WIth this possinble major security breach, and our credit card numbers floating out over god knows where, this is a sad day for me (I was a big believer in the ability of stores to figure all this stuff out in my favour, which would mean that I just had to do my end properly, pay the bills, shred the evidence, and all would be well)....

What to do? I feel a little protest boycott is in order......... yes, I will boycott.......but gee, I did see this really cute coat in there last week, do you think if everyone boycotts, they'll have to have even BETTER sales in the next few weeks????? Hmmmmmmmmmmmm think of the possibilites............

What to do, what to do....... I can say one thing, thank the Lord in Heaven, and all the angels and saints that it was NOT STARBUCKS.........now THAT would be an even deeper blow.........

Cheers - Joanne

Happy New Year

2007-01-01T16:12:00.000-08:00

This is Michelle, Craig and Brian (left to right) when we were out for supper just before Michelle's return to Winnipeg.

We've had a great holiday season with family. Both my sister and brother (and families) were in Regina this year, and it has been great. Also wonderful to have our little "Schweitzer" family under one roof again.

I continue to feel about the same - which means fine most of the time. I still have to rest and sleep a lot, but otherwise, I feel that I am doing quite well. Although the last scan still shows disease present, the fact that I am feeling OK is a pretty good sign for at least a bit of stability. Still, I expect the "chemo break" to come to an end in the next little while.

Upcoming Medical Issues: Jan 5 (routine visit, port care, etc...) in Winnipeg. Jan 19 - I meet my Saskatchewan oncologist at the Alan Blair Cancer Clinic..... Repeat CT scan: late January (not yet booked).

Cheer to all........... Happy 2007.

Home from the cruise

2006-12-14T10:21:00.000-08:00

This photo was taken of Gord and I by our lovely neighbours (Vince and Anita) in the next door stateroom on our cruise. The photo is of Gord and I on our balcony, we were waiting to go ashore on St. Thomas, US Virgin Islands.

We had a great time on our cruise, despite that fact that we had a few days of poor weather and also a couple of very rough sea days.... even so, the ship was beautiful, the islands too, it was relaxing and re-energizing all at once. We visited Puerto Rico, Antigua, St. Thomas and Bahamas..... turns out we LOVE cruising as a vacation and I only wish we had another one booked to look forward to!

I am feeling very well, I had no real restrictions (apart from getting extra sleep), and I enjoyed the entire vacation.

Medically, a bit of news... I finally have a Saskatchewan oncologist, and will see him January 19. The CT scans were unfortunately dissappointing, as I was hoping for further shrinkage of the tumors, but this did not happen. However, there are no new spots, and it is hard to tell if I am stable, based on the last CT scan. So, the plan is to rescan in 8-12 weeks (I chose 8) and that will tell us what we need to do next. So, I am still on "chemo-vacation" over Christmas, and I am VERY grateful for that.

Cheers to everyone...... Joanne

New York, New York

2006-12-01T20:33:00.000-08:00

This photo is of Gord and me on the "Lady Liberty" harbour cruise, just as it passed in front of the Statue of Liberty.

We had a fantastic time in NYC.... more details to follow. We were there for two nights and one full day (two partial days) and we made the most of it. We toured all over Manhattan, saw "Wicked" and the "Radio City Music Hall Christmas Spectacular". The city is amazing anyway, but to see all of the Christmas decorations was really a splendid experience.

My appointment at Memorial Sloan Kettering was also really good. It was a very thorough case review and they were very compassionate, honest and very thorough. I left convinced that I have been on good treatment paths in every instance along my journey with breast cancer. And, I also got some good advice for next steps as I continue to manage the disease. I already knew that I have an aggressive cancer "triple negative" for hormone and oncogene receptors, and so the only tx options are chemo. However, they reminded me that there are many chemo options and we discussed these (as I have with my oncologist here in Canada). And reviewed any possible experimental options (none where I live at the moment, unfortunately)

Thanks to my cousin Sean, who helped me get connected with one of the most respected breast oncologists in the USA... I am very grateful to have had the opportunity, even to meet and discuss my case with this well known, and well published physician.

I had a CT scan on Monday, just before leaving for New York. The NY docs had a quick look at the summary, but it needs interpretation by my oncologist, will get to that after next week... because.......

Tomorrow, Gord and I leave on the vacation we had previously planned - a Carribean cruise. So will provide another update when we return.

Cheers all...........

Away from email (and computer) for awhile...

2006-11-14T19:23:00.000-08:00

I figured out how to log onto my blog from my mom's computer!

We are all fine, but currently out of our house, because we had a sewer back-up earlier this week, and we cannot go back until the basement is cleaned, sanitized, and the walls/carpets are repaired. Oh, yeah, and the driveway is dug up.

We had our driveway repaired last week, and it appears to have damaged a sewer line...... hence the back up...... it has been quite a hectic couple of days and not real pleasant! It's a big mess, and anything that came in contact with the "water" is contaminated and must be cleaned or replaced.... At any rate, I am grateful that our insurance covers the interior of the house and it is being professional cleaned by the disaster cleaners.... we will have to fix the driveway ourselves, that's just the way the insurance works. A very boring way to spend money, all in all.

We are staying at my mom and dad's and I can't access my email remotely so until I get that resolved.... I won't be reading or sending email! So if you don't hear from me, that is why. Thanks for all the comments ... since I have no email I'll sent out blanket greetings and "thank yous" Judy - good luck with your move....... Patti......... 35 minutes???? unreal......... Anna... Steph's email is burried in my old computer account, but we only have a day in NYC anyway, so I guess we'll miss that chance..... Loretta, I hope you had a great time yourself in NYC...... Pat, Gwen, Kelly, Darryl, thanks for checking in..... and hello to everyone else....

Anyway, apart from disturbing the peace at my mom's house, we are all coping fine...... just another of life's interesting twists and turns....

Joanne

No news is good news!

2006-11-07T12:55:00.000-08:00

Nothing new!

My November 1/06 appointment with the oncologist was unremarkable..... physical exam was all fine, although it will be the scans later this month that will actually show what is going on.... still.... my lungs sound fine, abdomen, etc........ I am feeling quite fine, so I am certainly hoping that the disease is stable. I can't say I am confident of that, but certainly I am very hopeful!

And, I am feeling better and stronger, so the break from chemo is seeming like a very good thing.... I even have little hairs growing in all over my head, in between all the thinned out strands.... it might get looking a little freaky, but it is great to have hair! And great to not have it falling out all over the place....

I am scrambling to attend to the paperwork involved in the "consult" at Memorial Sloan Kettering, currently booked for November 30, and that will be an interesting experience as well. Gord and I will spend two nights in New York City and that will certainly be a thrill.

That's it for now....

Joanne.........Go Riders Go........

Chemo Vacation Begins Today !!!

2006-10-24T10:20:00.000-07:00

Well, today is the day I would usually go back for another treatment. So the chemo vacation officially begins today.

I am still quite fatigued, but it is managable, and will surely improve gradually! I have been a little worried about stopping the chemo, especially since it was working! However, the "break" will be good for me physically and I am working through being "bothered" by the uncertainty.

"The word which God has written in the brow of every person is hope" - Victor Hugo

"It is hope which makes the shipwrecked sailor strike out with his arms in the midst of the sea, though no land is in sight" - Ovid

So, it is onward-ho, and we keep moving forward! Upcoming medical events: November 1 (check up, blood work). November 27 (CT scan). November 30 (tentative) second opinion review at Memorial Sloan Kettering, NYC.

Joanne

Blogger problems?

2006-10-19T15:39:00.000-07:00

I'm republishing with a new entry to see if that solves the problem of people not being able to view this site....

All is fine with us this week... I am feeling much better than last week, and I can expect continued recovery for the next little while. My 45th birthday is today, mom and I had a lovely lunch at "The Willow" restaurant, which overlooks Wascana Lake in Regina and uses local and prairie ingredients. Very, very good.

Thanksgiving

2006-10-13T11:06:00.000-07:00

Sunday, October 8, 2006......... the Schweitzers enjoyed being together for Thanksgiving, and also a great meal at Grandma's.

Now, as I write, I'm just recovering from my "last" chemo treatment.... I'm finding it a bit slow going, the fatigue and overall crumminess is lingering.... HOWEVER.... I will be on "vacation" from chemo for the next while. No way to know how long - that will depend on the scans. My oncologist hopes for stability and thinks it is reasonable to think that we might get 3-6 months with no disease progression. Or longer, or less.........cancer is unpredictable, as I know first hand!

We'll see..........but it sure will be nice to have a break. My next appointment is November 1, and I will be having scans sometime in November/December to check out where things are at.

Thanks to everyone who keeps checking my blog and saying "Hello".....

"This time, like all times, is a very good time, if we but know what to do with it" - Ralph Waldo Emerson

I'm not sure if I know exactly what to do with my chemo vacation time, but I will be enjoying some 'normal' everyday life time, I'll be reading and watching "The View" and "Survivor" and "Amazing Race". I will be having the odd glass of red wine and plenty of dark chocolate. I'll be having coffee and visiting with my parents (down the street!). Gord and I are booked to go on a cruise (eastern Carribean) first week of December... and we are taking the kids to Phoenix in February. I'm planning to do more baking this holiday season, and looking forward to Christmas, when my brother and sister and families will be here.... all in all, very ordinary and wonderful times!

Cheers to all.... Joanne

A new twist for treatment

2006-09-29T11:22:00.000-07:00

Well........... this seems to be good news............ I have just finished my last Cisplatin treatment (I will not have any more of that drug due to possbile toxicities). I had thought that the Gemzar (Gemcitibane) would continue for a while longer, to ensure stability or further fight back the disease.

My oncologist now feels that the August scan results were good enough to warrant a complete "vacation" from chemo for awhile. Her plan is to follow me with scans and keep a close eye on how things are.... she seems confident that we can get several months of "chemo free" time without compromising my overall state, just be watching whatever is going on right now.... of course, if things go downhill.... then it will be a swift return to another set of drugs....

Until I see the next scan, I think I'm going to be a bit nervous about this turn of events, however, she has great faith in this being the correct thing to do and I have a high level of faith in her... I may do a bit of checking around (this being my nature), possibly a second opinion as well........ For now though, once I finish the rest of this "set" it might be time to enjoy myself for awhile..... since my quality of life is good, it will be time to regenerate my reserves, regain my strength and do a bit of travelling. Note that we are not at a disease free state, so it is a "given" that a return to chemo will be inevitable..... she is hoping for 3-6 months of a break.

That's the latest news and while it has me nervous, it also makes good sense...... treating Stage IV breast cancer as a chronic disease is a delicate dance of finding chemo drugs that will work for me and keeping your body as healthy as possible to tolerate the onslaught.

It's time for me to pull out a dose of hope again.....

Hope is patience with the lamp lit..........Tertullian

or:

A handful of patience is worth more than a bushel of brains..... Dutch proverb

Feeling better

2006-09-19T08:12:00.000-07:00

Well, it's now my official "week off" and I guess I am feeling better and stronger than I was last week... it's very easy to lose perspective about these things. I thought I felt fine then, but I d feel better now !!!! I do get "winded" and short of breath relatively easily, but if I slow down, then I'm fine..... I think we will have to do something about my low hemoglobin (anemia) fairly soon though as it has been an issue for awhile. I don't really want a blood transfusion, but I am getting used to the idea!

I'm keeping a fairly low profile, doing lots of resting, and reading, a few social outings (Yippeeeee), bit of shopping, stuff most of the world can fit into a day but I kind of spread out over several !!!

One bit of "non-news" is that I will continue having treatments in Winnipeg for the next several weeks.... there have been some delays in getting things organized to have my cancer care here in Saskatchewan..... so that is also what I will be focusing on.... the travel back and forth.....

At any rate, we are all doing fine, Brian is adjusting to Regina, Craig & Michelle to living on their own/University life...and to living on Kraft dinner...... and Gord to his new job (which he really likes). For the moment, all is calm !!!

Blood counts too low for chemo today

2006-09-12T16:32:00.000-07:00

Round 5, Day 15....... and my blood counts were all low, too low to have my treatment today.... it is weird to be disappointed to NOT have chemotherapy, but missing a treatment is always a worry.

Anyway..... I've had a little visit with Michelle and Craig here in Winnipeg and fly back to Regina Wednesday. The extra week 'off' treatment will help to boost up all my counts and I guess I'll rest up and hope that helps.

Onward......

Joanne's Stingray Adventure....

2006-09-08T17:00:00.000-07:00

Given the "crocodile hunter's" unfortunate demise, it occured to me that my own adventure factor just upped a notch........

Yes, I was in the ocean on a sandbar with hundreds of Stingrays. They are very fast little devils, they feel like you would imagine a dolphin would feel, quite smooth actually...... but their tail bit, (which they flick around as they race around for food) feels like velcro when it smacks you........

AND... it was my idea ....... Grand Cayman Islands, 2004..... The tour operators take a bunch of gullible tourists out to a sandbar, dump you out into the ocean, bring out a pail of squid, and BOOM...... all of a sudden the stingrays are all over the place, racing around, and bashing into your legs.......

Brave (????) people feed them, hold them up, take photos, etc.... Sadly, the truth of my adventurous nature rises to the top and the photo here pretty well shows what I thought of the whole thing.......I pretty much stood there and screamed every time one bashed into me, and then got the heck back into the boat and watched the festivities from a safe and reasonable distance....

The "Stingray Beer" (brewed in Grand Cayman) on the other hand, was very enjoyable!!!

Finish Line at Vancouver Weekend

2006-09-06T21:12:00.000-07:00

I'm not sure why this photo is teeny tiny, but maybe you can see the Vancouver walkers crossing the finish line. We are amazed and proud of them.

As for me: It's Day 9, of Cycle 5, I just returned from Winnipeg where I had Day 1 and Day 8 of chemo..... My bloodwork remains good enough, and although i certainly am getting increasingly fatigued, I am doing well.

First week(s) of school......Brian is settling in at Leboldus in Regina..... Craig has been at Engineering Orientation, learning to sign loudly and irritate/offend any non-engineer on campus.... Michelle is very, very busy with her sorority chapter, and all their classes begin Thursday... New beginnings for all.

CT scan shows good news!

2006-08-29T20:52:00.000-07:00

Hello everyone...

I am so grateful and pleased to be able to report good news......

I received the results of the CT yesterday and it was GOOD news... the chemo is working! Overall, there was a significant improvement in all of the cancer nodules and no new areas of involvement!!

The largest lung nodule was 1.3 cm and is now 6 mm....... the number of spots is fewer, some can no longer be seen....... The largest mediastinal node was 2.5 cm and is now 1.2 cm. My chest wall area, liver, abdomen and pleural area are all clear... no solid masses and no unwanted fluid anywhere that can be detected by CT.

So..... more of the same treatment....... since it is working, I get more.... I had Cisplatin + Gemzar today and it is tough, but it is certainly easier to tolerate knowing it is working ! At the moment, I feel semi-tough myself, I'm not big on the battle analogies with cancer, but I feel like bit of a warrior myself today..... Even my blood counts have improved to the point that we did not have to consider the blood transfusion that was on the table two weeks ago. Glory be.... They (blood counts) seem to have bounced back for no good reason, but overall it is a also a good sign that for now I am tolerating this regime... it will likely come to some intervention, especially with the Hemoglobin, but for now I am holding my own...

I'm in Winnipeg having my treatment, so I miss Brian's first day of school tomorrow, a big day for him.... Good luck Brian, he is a real trooper, very brave and he has maintained such a positive attitude about moving that we are just amazed with him..... He starts school - Grade 10 at Dr. Martin Leboldus Catholic High School, in Regina, tomorrow....

So, I am a lucky girl, and I feel very grateful for this good response, not everyone is so fortunate, and to a certain extent, finding a chemo that works is a crap-shoot..... We take every bit of progress and good news with a huge amount of gratitude... and we thank you all for the continued support of our family and friends, it really does make a difference in our lives...

Joanne and family

Some of the "Pink" Crew: Cheering and Fundraising...

2006-08-18T18:01:00.000-07:00

This photo is from two years ago, but it does show some of our "supporters" from the walk... This year, in ADDITION to exceeding their donations for the walk, my sister and brother's families held a garage sale, with proceeds to the Weekend to End Breast Cancer. They sold toys, kids items and pink lemonade and pink cookies and raised $400 to donate.

Weekend to End Breast Cancer

2006-08-18T17:47:00.000-07:00

This is a photo from two years ago, when (from left) my dad, my sister, brother and Michelle participated in the "Weekend to End Breast Cancer" in Vancouver.

I find it kind of hard to express how I feel about people who will walk 60 km in a weekend for any cause, and then most especially as it relates directly to me and to breast cancer. I find it very humbling and overwhelming.

At any rate, I am proud to know so many people who are again doing the walk this year. Michelle volunteered as 'crew' for the Winnipeg walk..... my sister, brother, sister-in-law and my niece Heather are all walking in Vancouver this weekend. Many friends are also walking in Calgary, Edmonton and Toronto, as is my cousin Erin (Toronto).

Even though the reality of "ending" breast cancer is many, many years away, and may seem frustrating....I am a living someone who is benefitting from research. The chemotherapy that I am now on would not have been available to me, even ten years ago, and is the result of newer research, as are the newer anti-nausea drugs and also newer chemos that may still be in line for me next.... My life is directly impacted by research advances, even if they don't seem "good enough", I'm still exceptionally grateful for it, and to everyone who contributes to this research in one way or another....

I send my congratulations and heartfelt thanks to everyone involved.

Hello Joanne's Blog "fans" - sorry for lack of communication

2006-08-13T08:47:00.000-07:00

We've been busy at the new house and it is going very well..... my mom has been working tirelessly, and my great friend, Anne, also spent a long day of hard labour with the unpacking......... and boy has that made a difference.... when you are unpacking alone it seems so overwhelming, you just want to sit and cry more than once during a day.... but with "outside" help it just makes a world of difference.....

A few more days should have the whole house done, but we already are happily living in the two main levels, almost everything is "good to go".... I am headed back to Winnipeg - another treatment on Tuesday and I have the "big scan" (CT rescan) on Thursday.

We do not have internet until later this week, we will have new email addresses at that time. I'll figure out how to create a link to the new addresses once I am back at my computer.....

Thank you everyone for leaving your comments, it is very exciting for me!!!

Cheers - Joanne

Big Week Ahead..... treatment and moving!

2006-07-30T20:47:00.000-07:00

Poor Heidi (our Miniature Schnauzer) is not happy with all the boxes and people going in and out... she will be going to her friends (groomer's) house this week so she will not be driven nuts by the movers... and vice versa.......

Well, it's a big week.

I have the "big" treatment Tuesday - Cisplatin and Gemzar, usually puts me out of commission for almost the full week......... and we have the "big" move ........ the movers arrive to pack Wednesday/Thursday and loading is Friday. Cleaning and final details Saturday/Sunday. I'll be lounging at the Holiday Inn while Gord, my mom and Brian man the fort - the movers do all the work, but it still takes organization and there are always oddball things that crop up.

I have no idea what the internet situation will be..........uh .......... and I forgot to sign us up for internet in Regina, so I don't have my our new email address.... stay tuned though, I will post updates...

The "little" move (Craig and Michelle to the apartment) is mostly complete now...... they are adjusting to their new life! Our Winnipeg phone number will be transferring to their apartment August 4, so that number remains in effect.... we can be reached there or by our cell phones...

Here is my little bit of inspiration for today........... I have no idea who this guy was, but this quote struck me as we embark on these major changes in our lives this summer:

"Hope is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out"..... Vaclav Havel

"Week Off" and more news from Shanghai and Hangzhou..........

2006-07-25T08:29:00.000-07:00

This is the week in the month that is totally free from treatments! Yippeeeeeee.... I'm feeling fine, fatigue an issue, but that is pretty normal, especially considering that my blood counts have been on the low side....

So....... I have a free week.........

Our movers arrive to do the packing beginning August 2.........it is lousy timing for me as I have a "big" treatment August 1, but mom will be her and I will move to a hotel room for the duration of packing, so it should work out better than it seems...

Another update from Mom..... They are doing GREAT, sounds like it really has been the trip of a lifetime... here's a little excert:

Greetings from rainy Hangzhou! We arrived by bus this morning and it has been raining all day, but that didn't stop us from taking a one-hour walk at the West Lake. Beautiful scenery, and although it was pouring, it was still hot. Yesterday in Shanghai was another amazing day. In the morning we toured Old Shanghai and went to a market created from a former Temple. Lunch at McDonald's before the afternoon concert. The concert hall really had to be seen to believe. The kids gave a great concert in an acoustically-perfect theatre. Only a couple of years old. It was well received and attended by a Canadian Trade Ambassador who went backstage afterwards to greet them.

News from the China travellers! Very exciting!

2006-07-18T09:31:00.000-07:00

Hi all... I think I've mentioned that my mom and dad are in China travelling with my sister's family. My niece Heather (the one who will be doing the 60k Weekend to end Breast Cancer later this summer) is in the BC Girl's choir and her choir, as well as the BC Boy's choir are "touring" China. Kelly (my sister) is a chaperone, and my mom and dad, Gary and Holly and Laurel are in accompanying tour.

Well, my mom found a computer, worked her way throught the fact that it was in a Chinese language! They are having a GREAT time and here is mom's email, which she gave permission for me to share here.... she will not be able to email her usual gang due to time, etc...

"We had great flights over. Ten hours to Tokyo and after a couple of hours layover, 4 hours to Beijing. Very hot, humid, sticky and hazy. Probably pollution and heat combination. We've had two very exciting days. The hotel is wonderful, fully modern, with all the amenities--including this Business Center. Saw the Forbidden City, Tian'anmen Square, Temple of Heaven, shopped at a 7-storey market (Holly was a whiz at bargaining), went to a silk market, and had a pedicab (rickshaw) ride through one of the old style "hutongs" (narrow alleys and old style housing). It was fantastic. Today we are off to the Great Wall.The food is incredible! They are taking us to great restaurants and we will all be gaining weight! Breakfast here at the hotel includes eggs, bacon, toast, pasta, salads, fruit, as well as all the Chinese menu items.

The choir's performance last night was awesome! What an incredible bunch of talented kids. The theatre was beautiful and the concert was well-received by the audience, especially when they sang a song in Chinese. Apparently the Chinese VicePremier was there. The people took lots of pictures of them after the show. I forgot to mention our visit to the Canadian Embassy, which was a great experience also. Had a presentation on video, a talk by the Ambassador, the choirs sang and then there was a reception for them.We are being treated royally.

Also, Laurel is a hit wherever we go. I think that while the Chinese people see Caucasian adults, they don't see too many children, so people are coming up to her and touching her cheeks. We are giving out Canadian pins, and when Laurel (or the other girls) give one to a child, they will reciprocate with a gift-- candy, a flag, or coin."

Round 3 Day 11

2006-07-14T18:02:00.000-07:00

Once again, the first week is the toughest, then it gets considerably easier..... During this round, I've had a 10% dose reduction, in the hopes that my blood counts will not drop so dangerously far down again. Supposedly, a dose reduction is common with this regime, and it is not supposed to decrease the efficacy of the drug.... which makes me wonder if this is true, why not just start out on the lower dose? But that is the sort of question that really has no good answer, much of the drug and dose business being a bit of a crap-shoot to begin with.........

Some may remember that I am to be rescanned sometime around now to see how these drugs are working......... I don't have a date for the scan yet, but now it is supposed to be in mid-August. Hopefully there will be a booked date soon. One thing for sure, my cough is completely gone which is either a good sign (although they didnt' really think there was enough cancer in me to be causing the cough in the first place).... OR.... it is a "at least it is not a BAD sign".....

That's it for now.... I'm a little draggy these days (normal course and due to the low blood counts, less oxygen capacity with fewer living blood cells, etc.... ) so I rest quite a bit (an activity I am not a fan of); but all in all, I'm doing pretty good.

Cheers and thanks to all you blogger responders......

Pasta for Kelly

2006-07-06T14:29:00.000-07:00

Most of the gang out for supper at "The Forks" after Craig's graduation

The restaurant did not have the following recipe........ but they should.........

Very easy........... taken from Food Network, not sure of exact proportions (For once in my life, no real recipe)

Pasta, any shape, but something heavier (penne) works best
Pancetta (Italian bacon) about 1/4 - 1/2 lb
onions
mushrooms (firmer brown mushrooms are ideal)
garlic - 1-2 cloves, minced
canned tomatoes (purists would use Italian Plum tomatoes) 16-28 oz at least
oregano (sprinkle)
salt, pepper to taste
fresh parsley, basil if you have it....
cream (optional, but highly recommended)

Boil pasta, in salted water.

Saute pancetta (if it is really lean you might need a bit of olive oil) until really crispy, it smells weird, but the end result will be good)... add onion, garlic, mushrooms, saute until onions are soft. Add tomatoes and oregano, salt and pepper..... cook 5-10 minutes or longer until sauce is thick..... If you want to make it super delicious, add some cream (or fat free cream for all you skinny people. in a pinch use milk, but the sauce won't be quite the right consistency)

Drain pasta and add to the sauce, toss to coat it all, sprinkle on the fresh parsley/basil if using and serve....

Oh, one of my favourite restaurants makes a version of this but puts in hunks of the baby mozzarella when spooning it onto the plate.... even MORE delicious....

Round #3 Day #2 Cisplatin + Gemzar

2006-07-05T14:52:00.000-07:00

Some of my garden. My friends Judy and Steven helped me get the flowers and get the beds ready. My mom planted, and I (Joanne) mostly bossed around the workers...... They look great and it is so great to have lovely flowers around.

Thanks to Judy, Steven and mom.... Those who bring sunshine to the lives of others cannot keep it from themselves - James M. Barrie

The first week of my chemo cycles are always the "big" ones.... not only does it take about 8 hours at the cancer clinic to get all the work done, bloodwork, infusions, etc... it is also the "big" one for side effects.

Cisplatin is an "oldie" heavy-hitter chemo drug. It is mostly used in bladder cancer, but can be approved for use in metastatic breast cancer. The cisplatin is very hard on the bladder and kidney, and so I have to drink tons of water constantly in order to prevent damage. It is a platinum based drug and so I think it interferes with DNA production of fast growing cells (cancer is particularly fast growing). It is also "high" on the nausea scale, but I do have numerous drugs on board to manage that. It also causes a fair amount of weakness and fatigue and is hard on the blood counts, esp. white blood cells. All this crap seems to last about about 6-7 days, then I feel pretty "OK" again. I get Cisplatin every 28 days.

Gemzar is a "newer" chemo drug, and also used mostly in bladder cancer, but found to have some use in metastatic breast cancer. By comparison it is a LOT easier. It causes nausea and general flu-like systems, but only for 24-48 hours, so it is much more managable.... also hard on blood counts, esp platelets.... I get Gemzar every week, with a one week break.....

So, in a nutshell, this first week is a challenge, then the rest of the month is much, much better.

It was great to have our family here - Gord's mom and dad were able to attend Craig's graduation dinner and dance, - my mom, dad, Darryl and his family, Kelly and her girls...... were here to visit and attended the convocation of Craig's grade 12 graduation.....Mom has generously stayed on to help our household (again), just before she leaves for China to accompany my niece (Heather's) choir on a tour. All of Kelly's family is going as well as my mom and dad and they should have many adventures to tell us about!!!! We're very excited for them.

Everything is falling into place with the house (officially sold)..... the kids are moving into their apartment (furniture is moved this Friday)... and we all keep moving forward........

Cheers to all..... joanne

It's sold

2006-06-27T07:38:00.000-07:00

Brian with the "For Sale" sign.........

Whew............... we've accepted an offer on the house, and while it is conditional on financing and home inspection.... if all goes smoothly it will be finalized by the end of the week.

Getting the house ready (and keeping it "show" ready) was no small feat, especially as I continued to have treatments throughout.... we couldn't have done it without my mom, Gord's sister and my niece... also Gord took time off work, and the kids pitched in at a moment's notice.

Round 2 Day 10

2006-06-22T10:23:00.000-07:00

This photo of desert flowers was taken just outside of my mom and dad's home in Scottsdale.

This week I had another treatment (Gemzar alone) on Tuesday. It's Thursday today, and I'm already feeling fine, so the "Gemzar alone" weeks are pretty easy to tolerate.....

Tonight is Brian's "Senior 1" (Grade 9) farewell.......... which is actualy a dinner and "dance" for parents and students. And I certainly feel up to it, so that is great news..... Next week is Craig's Grade 12 graduation, and my health team have rejigged my chemo schedule so that I have next week "off".........

So... apart from having kinda low blood counts it is clear sailing for the next week or so.......I am washing my hands like Lady MacBeth and hopefully all will be well....

P.S. I made some setting changes so that maybe will be easier to "comment" if you so choose! Thanks to my friends who pointed out their challenges commenting, apparently we have missed some brilliant replies!

"Unless you call out, who will open the door?" - Congolese Proverb

Kudos to the work crew!

2006-06-18T08:42:00.000-07:00

Well, our home now looks better than it ever did while we've been living in it!

Gord and the boys have been working for weeks. Gord's sister Laurelle, and her daughter Lacey also came from Saskatchewan and worked like slaves, helping us fix things up and clean things up... My mom has also arrived and thank goodness.......finishing touches were all week - carpet cleaning, etc..

Anyway, the house is ready for the market, it begins it's listing tomorrow, and hopefully will sell quickly...

Here it is......

http://www.webview360.com/territory/listingPage.jsp?oid=106979&territoryCode=602

Heather's 60k walk

2006-06-15T19:21:00.000-07:00

Some of my friends have asked about my niece, Heather, who is going to be walking in the "Weekend to End Breast Cancer" in Vancouver... August 18-20/06. The picture you see of Heather and me was taken when she came to visit me in Winnipeg just after I had my port re-inserted and just before I started chemo again.

http://www.endcancer.ca/site/TR?px=1463332&pg=personal&fr_id=1110

Heather recently had a birthday party for her 12th birthday and she had her friends bring donations for the "Walk" instead of presents for her. What a girl!!! I am a lucky aunt to have such wonderful nieces and nephews.

(The rest of my team is doing pretty well too... you will find them in Joanne's Team)

This is to Heather and all my walker friends: "Start by doing what is necessary, then what's possible, and suddenly, you are doing the impossible" St. Francis of Assisi

Round #3 Cisplatin + Gemzar, Day #3........ it's almost over, and tomorrow is another day!

"The sunrise never failed us yet" - Celia Thaxter

Round 2, Day 2 (Cisplatin = Gemzar)

2006-06-14T11:32:00.000-07:00

The picture above is from 2 yrs ago, the Vancouver "Weekend to End Breast Cancer" 60 km walk, and is (from the left) my dad, my sister, my brother and Michelle (daughter).... This past weekend was the first "walk" in Winnipeg. Michelle volunteered as "crew" for the event, and she struggles a bit with the emotional part of it, but I am very proud of her. I happened to drive past part of the walk route this year and it is very overwhelming and emotional in a way I can't explain. Seeing the walkers as they made their way to camp, tired but smiling.......It is very remarkable that so many people would go to so much effort, both in walking and in donating and even the organizing...... all to benefit people like me..... My sister, my 12 yr old niece, my brother and his wife (My SIL) will be doing the walk again this year in Vancouver (you can look them up as "Joanne's Team", and several friends whose lives have been profoundly touched by breast cancer are also walking in Calgary, Edmonton, Toronto.

Back to me.... (my blog after all, therefore all about ME !!!)

It's going OK...... all the meds they give for nausea, etc... seem to be working and I'm holding my own......... not running any races, but I'm not desparte either.... On Round 1, I was pretty down and out for sure for 5-6 days, so I expect it to be the same....

My Grandma Maloney used to say "What cannot be cured must be endured" (I think most of my aunts and uncles still say it) and that is pretty much what these big chemo weeks are like.... the good thing that with every passing hour, I'm closer to getting through the worst of it.

Hey, thanks to my blog responders, I feel very famous, but please don't anyone feel obligated!

Cheers, and I sincerely hope that you are all feeling better than me at the moment, and if you are not, I wish for you a stack of good drugs (certainly necessary for me at the moment).....

Joanne